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Amanda, this piece was not meant to be a personal "Me and PD' thing but a statement about all people with horrible diseases and conditions and the dreadful state of research in the U.S. Jerry Lewis has been doing telathons for muscular dystropy for over 50 years. My mom volunteered with the American Cancer Society in the 1950s. With so little progress in half a century, I was echoing (I thought) Mary Helen's dismay at the way the president gave such short shift to embyonic stem cell research in his State of the Union speech. and people who suffer who are "invisible" to our government. I was trying to tone down my rage at the impasse we are at in the states as well as the federal government. I failed. I should have connected my post with hers. In case anyone misunderstands, I do not do the fundraiser stuff due to embarrassment at my PD symptoms Nothing embarrasses me. I am a former experienced inner city high school teacher and we do not get embarrassed. Dragging my body around is very tiring and painful. PD is not the defining experience of my life. I do not have an inferiority complex like I did when I was young. In fact it's quite the opposite. I could do with a little shame and fear.. Old women can be tough,, annoying old bats. Ray ----- Original Message ----- From: "Amanda Phillips" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, February 04, 2006 5:42 PM Subject: Re: Invisibility > Ray - you, invisible ? Huh ! > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn