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I'm in that boat too, Rod. Diagnosed at age 47 in 2000, now 52, taking Carbidopa/Levidopa (C/L), Requip, and Selegiline. My sleep is down to about 5.5 hrs a night. It's my symptoms, the tightness that builds up as I sleep, and the tremor in my right hand (trying to train self to not sleep with r. hand near face!) that wake me up, and my anxiety about not having enough time that keeps me awake and makes me drag myself out of bed. I was on C/L almost from the time I was diagnosed. In retrospect, I could have gone years without it, but none of my doctors told me about the long term side effects. I went off the stuff last year, a very difficult year generally, for about 9 months. I wimped out and went back on at a time when my emotional state was under siege, so to speak. I'm totally unsure what to do now. Should I try to get off it again? Should I continue and make the most of what C/L offers in the short term? The hardest thing is that everyone's PD is different, so you just have to make careful choices as a team with your doctor, your family, your research arm (or Google) and your own instincts. People here swear by Cinemet, others are dead set against it. You take Mirapex, I take Requip. You say it was offensive pass interference, I say it was a mondo-bogus call. Etc. Good luck. Enjoy! Rick McGirr ----- Original Message ----- From: "Rod Adams" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, February 06, 2006 2:50 AM Subject: Re: Diagnosed 1 year and 3 months ago > Bill > > Thank you for the advise. Right now I am taking Mirapex 1.50 mg three > times a day and Carbindopa / levo .25 mg three times a day along with > Clonazepam 0.5 mg right before bed. Maybe I should talk to my doctor and > see if I can take less. I am new at this so I just take what he said I > should take. After reading some of the post's I don't know if that is a > good thing. I was diagnosed at age 45 and I wonder what this will be like > at age 55. I don't sleep but maybe 4 a night. When I am up everyone > tells > me to sit and relax because I am always finding something to do, reason > being I am afraid of what I will not be able to do later. > > Rod > > ----- Original Message ----- > From: "Beverly Bashe" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, February 05, 2006 10:11 AM > Subject: Re: Diagnosed 1 year and 3 months ago > > >> That's good advice, Bill. The less meds, the better in the long run. >> Take >> only what you absolutely need. >> >> Bev cg to David, diagnosed 10 years ago, symptoms for 38 years...possibly >> more >> ----- Original Message ----- >> From: "Bill Lawless" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Sunday, February 05, 2006 12:32 AM >> Subject: Re: Diagnosed 1 year and 3 months ago >> >> >>> Rod, >>> This Parkinsons is a manageable disease for at least five years. Though >>> each case is different. Take as little meds as possible to get you able >>> to >>> work, drive,etc. Do not worry about what others see or think. Get as >>> much >>> rest as necessary and regular exercise. When five years have passed and >>> you have the experience of management of the condition you can plan the >>> next five. Most people like to assist others and our PD gives them an >>> easy >>> opportunity to help. There is lots of information available online and >>> if you stumped ask here and you get many responses >>> >>> Regards, Bill Lawless [log in to unmask] >>> [Post hoc, ergo propter hoc!] a logical fallacy. >>> ----- Original Message ----- >>> From: Rod Adams >>> To: [log in to unmask] >>> Sent: Friday, February 03, 2006 3:17 AM >>> Subject: Diagnosed 1 year and 3 months ago >>> >>> >>> Hello all >>> >>> I was diagnosed by a neurologist in Florida over a year ago. It >>> was >>> hard for me to believe that I had Parkinson's so I got a second opinion. >>> Same diagnosis. I left Florida and moved back to Oklahoma where my >>> family and got a third opinion hoping the the other two was a mistake. >>> The neurologist told me what I had before I even got to sit down in his >>> office. I guess I will have to come to terms with this. I knew >>> something >>> was wrong. I just don't like to admit it. I have been looking for a >>> support group for a while. Me and my family does not talk about the PD >>> to >>> much but I do notice that everytime I get around them it is as though >>> they >>> are watching me just so they can see me shake etc. >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> Rod Adams >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn