HI:
I'm new to list.I was first diiagnosed in1999 with pd. Had 2 Dtrs
involved.ONe was alternative meds, who suggested
glutithone[spelling?]injections which i did for a # of yrs.3x awk..Ifinally
went on 25/100sinemmet ,first with 1 then 3 a day . The alternative DR. died
unexpectivelyand i had my Nuero alone who was never in favor of the Glut
shots & since they were not of much help,I stopped them.
I ALso began to get painless spasms in my legs,where the muscle tightens
involuntarily & thenrelaxes.It goes away when i take sinemet after1 hr &
after staslevo100,goes after 1and1/2hrs.
Nuero says its pd,however i get cnflicting opinion from rehab Dr.,who says
its nerveous leg .Anyone know???
.Then i startedd to have freezing and my Nuero put me on stalevo 150 3x a
day which stopped the freezing.That occured about 2 yrs & 3mos. ago . I had
a fellow pd friend who had DBS which had been successsful.I than had DBS of
STN in NOV OF 2004 after being offered the alternative of getting intio a
blind study of DBS of GP or of DBS of STN ,&after much research ,I opted for
the DBS of STN & didnt participate in the study.IT has been15 mos. since my
nuerotransmitter has been on . with result mixed. They follow:
GOOD
1--THe tremor on left side was gone as was the claw that was my left hand.
2-Ive lost stiffness or masked some of the symptoms.
BAD
1-!and 1/2 mos in the period ,since the operation where i had my balance,no
freezing but my annunciation was bad. .tHe1and1/2mos were broken up into
3periods.the last 2 were in the end of April and the end of Sept .each time
I went back it was changed to help bad slurring in my annuncation.Now,I
can"t walk ,except with a walker , or talk & freezing is intolorable .
Now I have been advised to begin[which i have]taking 1mg of rasagaline along
with my stalevo100's and 1 sinemet daily.anyone out there on rasagagline
???
WERE you helped? HOw?
I never have had any other relief except stalevo stopped my freezing for
6mos. ANd the DBS gave me 6weeks of relief from freezing but it was a trade
off with loss of annunctation.
thks,
george
>From: Don McKinley <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Don
>Date: Fri, 10 Feb 2006 11:04:31 -0500
>
>THANK U
>----- Original Message -----
>From: "Beverly Bashe" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Thursday, February 09, 2006 10:00 AM
>Subject: Don
>
>
>>Hi, Don. Here's a post for you. I also have Outlook Express. Sometimes,
>>it takes awhile for my message to appear on list.
>>
>>
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>>In the body of the message put: signoff parkinsn
>>Bev
>>
>
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>To sign-off Parkinsn send a message to:
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>In the body of the message put: signoff parkinsn
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