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Hear, hear!!!!!!! Bev... ----- Original Message ----- From: "rayilynlee" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, February 05, 2006 12:17 PM Subject: Re: Invisibility/Amanda > Amanda, this piece was not meant to be a personal "Me and PD' thing but a > statement about all people with horrible diseases and conditions and the > dreadful state of research in the U.S. Jerry Lewis has been doing > telathons for muscular dystropy for over 50 years. My mom volunteered > with > the American Cancer Society in the 1950s. With so little progress in half > a > century, I was echoing (I thought) Mary Helen's dismay at the way the > president gave such short shift to embyonic stem cell research in his > State > of the Union speech. and people who suffer who are "invisible" to our > government. I was trying to tone down my rage at the impasse we are at in > the states as well as the federal government. I failed. I should have > connected my post with hers. > > In case anyone misunderstands, I do not do the fundraiser stuff due to > embarrassment at my PD symptoms Nothing embarrasses me. I am a former > experienced inner city high school teacher and we do not get embarrassed. > Dragging my body around is very tiring and painful. > > PD is not the defining experience of my life. I do not have an > inferiority > complex like I did when I was young. In fact it's quite the opposite. I > could do with a little shame and fear.. Old women can be tough,, annoying > old bats. Ray > ----- Original Message ----- > From: "Amanda Phillips" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, February 04, 2006 5:42 PM > Subject: Re: Invisibility > > >> Ray - you, invisible ? Huh ! >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn