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Rayilyn: THanks for your response. MYdbs /stn was 11/04 .I aMm seeing dr. next wk.I am happy with results ,ithink.BUT I can't walk or talk.[balance is poor ]. Ithink it can be corrected by the nuertransmitter, and freezing is bad.hopefully i'm correct.I will give up talkng for walking george >From: rayilynlee <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: George DBS/tradeoffs >Date: Sun, 12 Feb 2006 10:41:46 -0700 > >George, my DBS in 2003 stopped tremors which are sneaking back, I probably >need to be reprogrammed, but I count my speech difficulties to that time, >of course it's hard to tell as that is a PD symptom I did not have >originally. My left foot was completely turned in by dystonia and is >still >straight, but my left leg still draws up and toes are knotted. My physical >therapist here does not want to give me any more botox injections which >really helped. He is all for exercise although he looks like he could use >some himself. Exercise has suffered due to cataract surgeries and while I >think it helps I tried to tell him it does not cure PD. PD always wins. >Ray > >- Original Message ----- >From: "g.c. beyer" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Saturday, February 11, 2006 3:56 PM >Subject: Re: rasigilene? & other questions > > >>HI: >> >>I'm new to list.I was first diiagnosed in1999 with pd. Had 2 Dtrs >>involved.ONe was alternative meds, who suggested >>glutithone[spelling?]injections which i did for a # of yrs.3x >>awk..Ifinally >>went on 25/100sinemmet ,first with 1 then 3 a day . The alternative DR. >>died >>unexpectivelyand i had my Nuero alone who was never in favor of the >>Glut >>shots & since they were not of much help,I stopped them. >>I ALso began to get painless spasms in my legs,where the muscle tightens >>involuntarily & thenrelaxes.It goes away when i take sinemet after1 hr & >>after staslevo100,goes after 1and1/2hrs. >>Nuero says its pd,however i get cnflicting opinion from rehab Dr.,who says >>its nerveous leg .Anyone know??? >> >>.Then i startedd to have freezing and my Nuero put me on stalevo 150 3x a >>day which stopped the freezing.That occured about 2 yrs & 3mos. ago . I >>had >>a fellow pd friend who had DBS which had been successsful.I than had DBS >>of >>STN in NOV OF 2004 after being offered the alternative of getting intio a >>blind study of DBS of GP or of DBS of STN ,&after much research ,I opted >>for >>the DBS of STN & didnt participate in the study.IT has been15 mos. since >>my >>nuerotransmitter has been on . with result mixed. They follow: >> GOOD >>1--THe tremor on left side was gone as was the claw that was my left hand. >>2-Ive lost stiffness or masked some of the symptoms. >> >> BAD >>1-!and 1/2 mos in the period ,since the operation where i had my >>balance,no >>freezing but my annunciation was bad. .tHe1and1/2mos were broken up into >>3periods.the last 2 were in the end of April and the end of Sept .each >>time >>I went back it was changed to help bad slurring in my annuncation.Now,I >>can"t walk ,except with a walker , or talk & freezing is intolorable . >> >>Now I have been advised to begin[which i have]taking 1mg of rasagaline >>along >>with my stalevo100's and 1 sinemet daily.anyone out there on rasagagline >>??? >> >>WERE you helped? HOw? >> >>I never have had any other relief except stalevo stopped my freezing for >>6mos. ANd the DBS gave me 6weeks of relief from freezing but it was a >>trade >>off with loss of annunctation. >> >>thks, >>george >> >> >> >> >> >> >> >> >> >> >> >>>From: Don McKinley <[log in to unmask]> >>>Reply-To: Parkinson's Information Exchange Network >>><[log in to unmask]> >>>To: [log in to unmask] >>>Subject: Re: Don >>>Date: Fri, 10 Feb 2006 11:04:31 -0500 >>> >>>THANK U >>>----- Original Message ----- >>>From: "Beverly Bashe" <[log in to unmask]> >>>To: <[log in to unmask]> >>>Sent: Thursday, February 09, 2006 10:00 AM >>>Subject: Don >>> >>> >>>>Hi, Don. Here's a post for you. I also have Outlook Express. >>>>Sometimes, >>>>it takes awhile for my message to appear on list. >>>> >>>> >>>>---------------------------------------------------------------------- >>>>To sign-off Parkinsn send a message to: >>>>mailto:[log in to unmask] >>>>In the body of the message put: signoff parkinsn >>>>Bev >>>> >>> >>>---------------------------------------------------------------------- >>>To sign-off Parkinsn send a message to: >>>mailto:[log in to unmask] >>>In the body of the message put: signoff parkinsn >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn >> > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn