 |
 |
Hi, Robyn, I appreciate your comments and your presence here. I feel for ya, having been stricken so early. But if you have family with MS, you must have a leg up on most of us in that you have a much greater understanding of dealing with people's perceptions and your own attitudes from the start. Hopefully you've had a primer course on some of the useless "why me"- type thinking that I was trapped in, and will avoid some of the time-wasting depression I went through, and hopefully it won't devastate you when people look at you funny and when your "friends" stop calling. Knowing who your true friends are is a blessing and interesting in its revelations. Actually, the plus side of being stricken early is that your body has greater capacity to heal and build itself (with your help, of course). You can make yourself very strong, and that will carry you far. Thanks for coming. Enjoy the party. Rick McGirr ----- Original Message ----- From: "Robyn Hall" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, February 14, 2006 11:01 PM Subject: Intro and response to some of the mail I have read > Hello my name is Robyn. I am 34 and at the ripe old age of 31 I received > the PD diagnosis. MS runs in the family so I put off going to the Dr for > an > official diagnosis for several years never dreaming it was PD. I am now > on my > 2nd neurologist who seems on top of the new med's and treatment available > for > PD. > > I was on artane (2 mg 3xday) for a short period of time but the side > effects > far out weighed the benefits. I saw peole who were not there and I would > just start talking to them out of the clear blue. On the flip side this > side > effect did entertain my children. I have since moved on to Cogentin .5mg > 4Xday. > I have been on it for about three months and the same side effects are > starting again. > > As for the disability questions PD is on the governments list of > disabilities but that is not an automatic approval from what was explained > to me. I > filed in Feb of 05 and my application was rejected. I filed an appeal > and it > was approved without any questions the same time my six month waiting > period > ended. I have no idea if it is different in each state but I'm in Ohio. > > My companies long term disability has been a nightmare compared to SSD. I > have a great family physician who is on top of everything and that is the > only > reason I'm sure I have not gone hysterical dealing with people who are > judging > my abilities w/o ever meeting me. > > Well I have babbled long enough but I am very glad I found this group. > > Robyn > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn