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Nick. Are you sure his wife is his secretary? I once worked for a lawyer whose wife was his secretary, but it's kind of unusual. Ray ----- Original Message ----- From: "Nick & Oanh" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, March 16, 2006 1:40 AM Subject: Re: Nick/source of turner's 2004 senate testimony > Ray, > I called Dr L's office and his company. Did not get any real info. His > wife/secretary suggested I go for a consultation with Dr. L Only costs > $550!!! Just to get info his wife won't give on the phone. > Nick > > rayilynlee wrote: > >> Nick, >> Any brain surgery is always serious and risky, but not being a brain >> surgeon I don't know how difficult this is as brain surgeries go. >> Over 3 >> years ago his grant paid for the surgery but not the very expensive >> office >> visit. >> >> DBS takes hours of navigating the brain with electrodes, but it is not a >> cure either and I don't see anything that involves brain surgery as a >> "cure" >> candidate. The real problem is the cause of PD is unknown, whatever >> disease >> process killed Turner's brain cells to give him PD killed the implants >> which >> after all came from his diseased brain. This is why we need ALL kinds of >> SCR. >> >> I think you need to call Dr. L's office like I did OVER THREE YEARS AGO. >> Maybe your interest and questions re this procedure would be satisfied. >> Ray >> ----- sOriginal Message ----- >> From: "Nick & Oanh" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Tuesday, March 14, 2006 4:58 PM >> Subject: Re: source of turner's 2004 senate testimony >> >> >>> I believe the reason that ASCs are not being used to treat PD, a la Dr. >>> Levesque, is that the procedure is to darn difficult (read Costly). Dr. >>> L took a biopsy from Turner's brain, filtered out the few neural stem >>> cells, and cultured them for 9 months in order to have enough to >>> transplant into Turner's brain. >>> >>> Dr. L said in 04, and I believe earlier, like 02, that he was preparing >>> a phase 2 study. Well, 4 years later, his web page states that the >>> study is on hold by the FDA until he has a processing system that meets >>> GMP (good manufacturing procedures). His company is either low on cash, >>> or he is finding it very difficult to meet GMP, or he figures that not >>> many will pay the big bucks to have the procedure done on them, >>> considering it may only last 4 years more or less. >>> >>> Dr. L's company is at: http://www.neurogeneration.com/ >>> >>> Nick >>> >>> rayilynlee wrote: >>> >>>> Thanks Mackenzie for providing the testimony. It should be noted that >>>> Turner is/was in his 40's. I was 67 when I had DBSs. The aging >>>> process is >>>> not a factor on our side when fighting PD progression. >>>> Ray >>>> ----- Original Message ----- >>>> From: "mackenzie" <[log in to unmask]> >>>> To: <[log in to unmask]> >>>> Sent: Monday, February 27, 2006 2:29 PM >>>> Subject: turner's 2004 senate testimony >>>> >>>> >>>>> On July 14, 2003, Turner was trotted out before the Senate again as >>>>> evidence that adult stem cells are better than embryonic and that >>>>> PD is >>>>> being treated with them (see link below). Looks like Brownbeck >>>>> facilitated >>>>> the trotting - maybe this is what Ray saw? >>>>> >>>>> it would be hilarious if it weren't so disturbing - Brownbeck is out >>>>> there spreading the word that ASCs are treating PD, but.... where are >>>>> they >>>>> being used to do that? no one can find them! why aren't PWP the world >>>>> over >>>>> flocking to have this procedure? what does he expect people to >>>>> believe - >>>>> that those wicked old scientists and supporters of ESCR have found a >>>>> miraculous new treatment but they are hiding it from the world, >>>>> because... >>>>> they would rather kill embryos? >>>>> >>>>> it boggles the mind. >>>>> >>>>> http://commerce.senate.gov/hearings/testimony.cfm?id=1268&wit_id=3676 >>>>> >>>>> Nick & Oanh <[log in to unmask]> wrote: >>>>> Ray, >>>>> >>>>> What is your source for Turner's PD returning? >>>>> >>>>> How many years of good living has Turner had? >>>>> >>>>> Nick >>>>> >>>>> rayilynlee wrote: >>>>> >>>>>> Mary Ann, >>>>>> >>>>>> the "neurologist" of whom you speak was a neurosurgeon, not an MDS >>>>>> movement >>>>>> disorder specialist. >>>>>> >>>>>> As for embryonic stem cell implants for PD I didn't think there were >>>>>> any >>>>>> yet, only animal studies. A fetal cell experiment had disastrous >>>>>> results. >>>>>> Dennis Turner's PD has returned after Dr. Levesque used his own adult >>>>>> brain >>>>>> cells, so I agree, cell replacement may not necessarily be the >>>>>> answer. But >>>>>> hESCR is needed according to most scientists to learn the >>>>>> etiology(causes) >>>>>> of disease, surely a precursor to treatment. of PD and other >>>>>> diseases. All >>>>>> kinds of SCR, knowledge and honesty are needed in this fight. Ray >>>>>> ----- Original Message ----- >>>>>> From: "Mary Ann Ryan" >>>>>> To: >>>>> >>>>> >>>>> >>>>>> Sent: Thursday, February 23, 2006 6:33 AM >>>>>> Subject: Re: Why? Mary Ann >>>>>> >>>>>> >>>>>>> If >>>>>>> >>>>>>>> whole swaths of scientific research are now decreed "out of >>>>>>>> bounds" as >>>>>>>> discussion items, what will this group have left to talk about? >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> Scientific research is *not* out of bounds. Discussions about >>>>>>> people's >>>>>>> right to disagree about stem cell research based on moral or ethical >>>>>>> issues >>>>>>> has, in the past, only proven divisive. A neurologist left this list >>>>>>> (even >>>>>>> though he provided wonderful insights into the treatment and >>>>>>> mechanism of >>>>>>> PD) specifically because of this kind of discussion. We all need >>>>>>> to be >>>>>>> united in this fight - not divided. >>>>>>> >>>>>>>> >>>>>>>> It's now widely accepted that stem cells hold the key to cures for >>>>>>>> Parkinson's and many other diseases and conditions. >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> Stem cell implants in PWP were discontinued because of the resulting >>>>>>> violent >>>>>>> dyskinesia that occurred. It is altogether possible that stem cells >>>>>>> are >>>>>>> not >>>>>>> the answer to PD. >>>>>>> --------- >>>>>>> God bless >>>>>>> Mary Ann (CG Jamie 66/26 with PD) >>>>>>> >>>>>>> >>>>>>> >>>>>>> -- >>>>>>> No virus found in this outgoing message. >>>>>>> Checked by AVG Free Edition. >>>>>>> Version: 7.1.375 / Virus Database: 268.0.0/266 - Release Date: >>>>>>> 2/21/2006 >>>>>>> >>>>>>> ---------------------------------------------------------------------- >>>>>>> >>>>>>> To sign-off Parkinsn send a message to: >>>>>>> mailto:[log in to unmask] >>>>>>> In the body of the message put: signoff parkinsn >>>>>>> >>>>>> >>>>>> ---------------------------------------------------------------------- >>>>>> >>>>>> To sign-off Parkinsn send a message to: >>>>>> mailto:[log in to unmask] >>>>>> In the body of the message put: signoff parkinsn >>>>>> >>>>> >>>>> ---------------------------------------------------------------------- >>>>> To sign-off Parkinsn send a message to: >>>>> mailto:[log in to unmask] >>>>> In the body of the message put: signoff parkinsn >>>>> >>>>> >>>>> >>>>> __________________________________________________ >>>>> Do You Yahoo!? >>>>> Tired of spam? 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