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Contact: Joyce Oberdorf of the Michael J. Fox Foundation for Parkinson's 
Research, 212-509-0995 ext. 214 or [log in to unmask] 
 NEW YORK, March 20 /U.S. Newswire/ -- The Michael J. Fox Foundation for 
Parkinson's Research today announced a two and a half-year grant of $200,000 
to help fund the pilot portion of the California Parkinson's Disease Patient 
Registry. Additional funding has been provided by The National Institutes of 
Environmental Health Sciences (NIEHS).
 "The establishment of a patient registry may result in a standardized and 
complete data collection that has the potential to deepen our understanding 
of the causes of Parkinson's," said Deborah W. Brooks, president & CEO. "Such 
an effort could play a significant role in accelerating progress toward a 
cure."
 The three-year pilot project will be led by the Parkinson's Institute in 
collaboration with the California Department of Health Services. The team 
will also include investigators from the University of California, Los 
Angeles, and Kaiser Permanente Northern California, as well as patient 
advocates. This project will develop and implement procedures for data 
collection on all Parkinson's cases within two targeted California counties. 
The regions will be selected based on a representative diversity with regard 
to race and ethnicity, socioeconomic status, and residence as well as the 
availability of other local research databases. 
 "California's rich diversity provides an ideal climate to investigate PD risk 
factors," said Caroline M. Tanner, MD, Ph.D., director of clinical research 
at The Parkinson's Institute. "For several decades, the state has mandated 
reporting usage of a wide range of chemicals, which are leading environmental 
suspects as causes for PD. Combining this chemical usage data with PD 
incidence and dispersion may yield highly relevant information about who is 
getting this disease and why."
 This pilot project is the result of recent passage of legislation to support 
the beginning of the Registry. Gov. Arnold Schwarzenegger approved the 
California Parkinson's Disease Registry Act (CPDRA) on Sept. 29, 2004, which 
mandated the California State Department of Health Services Director to 
create a database of people with Parkinson's disease for research purposes 
only. Physicians, pharmacists and other health care practitioners diagnosing 
or providing treatment to Parkinson's disease patients are required to report 
cases of Parkinson's disease for use in the database. The registry program 
will include monitoring of Parkinson's disease associated with chemical 
agents encountered by the public, both in occupational locations and in the 
environment.
 The Parkinson's Institute will hold a stakeholders' meeting on March 28 at 
1515 Clay Street in downtown Oakland, for Parkinson's patients, clinicians, 
researchers, advocates, and representatives from the government. Following a 
series of informational presentations describing the Registry Project, 
participants will be asked to provide their input and support. 
 ---
 About The Michael J. Fox Foundation
 Founded in 2000, The Michael J. Fox Foundation for Parkinson's Research is 
dedicated to ensuring the development of a cure for Parkinson's disease 
within this decade through an aggressively funded research agenda. The 
Foundation has funded nearly $70 million in research to date, either directly 
or through partnerships.
http://www.usnewswire.com/
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/© 2006 U.S. Newswire 202-347-2770/

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