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I made a mistake recently - a foolish mistake - that I feel it would
be wise to share with others lest they make it too - and because
there is much that can be learned from it.

It started apparently, innocently enough, with a problem with the
rotator cuff on my right shoulder.  I'm not certain what caused the
problem there - it might have been exercising or mouse work or
stretching to reach something.  Whatever it was, it happened.  And
before long I had a miserable pain.  Not a constant pain, but rather
a sharp pain that arose when my right arm was touched in any of
several manners.  But immediately following that pain came a second
jolt - which was short but crippling in its magnitude.

I had an appointment with an orthopaedist in January to discuss a
problem with my leg.  His appointments are limited to one problem at
a time, so I changed the appointment to cover my shoulder
instead.  He sent me to a nearby hospital for an MRI, and I would see
him again in three weeks.

The pain grew worse.  I went to the emergency room at the hospital
where the MRI had been done.  The doctor there was able to retrieve
the report on the MRI.  That's how I learned that it was the rotator
cuff that had been damaged.  The doctor gave me pain pills and a sling.

Days later I went to the emergency rooms at two other hospitals, but
all I got were pain pills.  And the pills all made me groggy but they
didn't stop the intense pain.

I was frantic.  I finally guessed that the second jolt was that of
dyskinesia from my Parkinson's.  To test it, I discontinued my
Parkinson's  medications.  No more Sinemet.   No more Requip.  No
more Comtan.  It worked.  I felt so good about it that I didn't
return to the Parkinson's meds. And that's where the trouble started.

As the days went  by, I started to lose strength.  I knew it was the
Parkinson meds, but I didn't know which one(s) to take to get my
strength back and still avoid dyskinesia.  I called the movement
disorder specialist in London, but I couldn't reach him, and an
associate of his wouldn't touch a person she hadn't seen.  I tried
other doctors - no luck.  I was in a downward spiral.  Who could help?

Finally on the night of 11 March, I knew I needed help.  We called
911, and I was off to the hospital by ambulance..  I lay on a hard
bed in the emergency area with its  bright  lights for four hours,
while the doctor reviewed the results of some tests, I was moved to
the near-critical care area.   Two days there were followed by seven
in medical ward and eleven in rehab.  I was happy to return home on
Friday - where the computer is proving no friend.  It is hard to type
- but generally hard just to get around. - even with a rolator.  But
I keep busy doing the exercises that they told me to do, and I hope
to be back up to strength soon.

So here I am, over three weeks later, finding that doing little
things that were once so easy are now difficult to impossible, and
hoping that following the therapist's instructions will bring back
the strength and abilities I once had.  I have a long way to go, and
sitting at the computer won't help it.  So don't expect to hear a lot
from me - at least not for a while.

The moral of this little experience - don't cut out your meds without
a doctor's permission.  Or I can tell you  what hell you will
probably go through.

Art

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