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Hi Maria I am mex-american have had PD since age 36 ..am now 53 I live in Phoenix Ariz Most of my husband's family is in Texas ..Are you familiar with lockheart TX? We're gooing to Fort Worth TX the last week of April for our son's wedding- would love to meet you. Yoou can call me anytime.623-581-3491. It's difficult to type and write so this is very short. i know the culture stuff can be differant for the doc's etc Mary helen Davila ----- Original Message ----- From: "Maria Cuevas" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, April 05, 2006 8:59 AM Subject: A new signee... Hello All, My name is Maria from Texas. I've been doing research on advanced Parkinson's disease on the internet because my 74 year old mother's disease is progressing rapidly. I've recently found that there is a local support group in my home town so I'm looking forward to hearing from the group. In doing my research, I found this link. I'm 43 and have been given this duty/assignment of being the main caregiver for my mother. To me this comes naturally and though want to do this, I still feel overwhelmed most times. It's a learning process. I'm very frustrated with our doctors (neurologist) and feel that they are not taking the time to explain what is happening in detail and what is to happen in the future. I'm scared and I really don't know what to expect. I only know that my mother after having this horrible disease for 7 years, that the disease is progressively getting worse since January of this year. I want to understand what to expect, how to make my mother comfortable and to hopefully bring her comfort to what I believe is the beginning of the end. I hope to receive some feedback. I am the youngest of 6 children and it's like I will have to inform my other siblings and learn to train them to help me out. My father is from the "old school" and in the Hispanic culture, the woman is to take care of the man....therefore my mother has basically tended to his every need, has taken care of him since the day they married. I hear him say he is willing to learn how to take care of her now so I'm in the process of showing him how. Does anyone out there feel that we as patients of doctors, that in our present time and day we are only numbers, quotas to them?? Where has the compassion of our professional people we know as doctors gone to? I need explanations, reassurance, sympathy, knowledge, comfort, really anything but "what's wrong with her so I can prescribe something for her?". Our doctors have lost that "bed side manner" technique taught in medical school I believe. I can go on and on in this subject. I really just need to know that caring "professional" people do exist and that if they even realize what it is they are not doing? Thank you all. Maria ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn