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Pauline The one DBS and the other redo of left side of brain stopped my tremors which are now returning on right leg, my "good" side. I may need to be reprogrammed or the disease may have just progressed, it's been almost 3 years since surgeries. meds didn't help but once before and didn't help after DBS so I don't take them. my speech difficulties started with 2nd surgery. my fine motors skills, movement were not improved and are getting worse, but it is impossible to know if I would be able to move at all w/out DBS. Also, everyone gets a different result, from complete failure to almost getting your life back. The way I got through the surgeries was by hoping I would die on the operating table. DBS is scarey not only because you must be awake, but because the outcome is so uncertain. I don't see how I could have lived any longer wih those tremors. DBS is especially successful treating essential tremor and Parkinson's tremor, but I have heard it helps other symptoms and people need fewer meds. although dystonia in toes was not helped, left foot straightend out on operating table. I once swore I would never have this surgery but ended up doing it twice, coming through with flying colors with a 'bad' attitude. if she can, it is very important to get a competent surgeon and team. Good luck, Ray ----- Original Message ----- From: "Pauline Spaulding" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, April 05, 2006 9:37 AM Subject: Re: Parkinson's disease Hi you say that the DBS surgery helped with the tremors. Is that all the two surgery's helped? I have a very close surgery whom we have all been trying to get her to have it but to no avail. she is scared to have it. I was hoping to show her some success stories to encourage her to have it. rayilynlee <[log in to unmask]> wrote: Hi Sabrina, I went with the "Unlock the Cells" T-shirt because I feel like a prisoner. The PD meds don't help me at all, so I am always "OFF", but I know what you mean.. I had DBS brain surgery twice and that helped with the tremors. How about "I'm all shook up" for a T-shirt for Parkinson's? I'm putting your email on my Parkinson's List. Thanks and good luck. ((((Sabrina))))) Ray ----- Original Message ----- From: To: "rayilynlee" Sent: Tuesday, April 04, 2006 6:08 AM Subject: Re: Parkinson's disease > hi. thanks for writing! I do have a shirt for Parkinson's - "Turn me on" > got the idea when I met Michael J Fox and he explained the on state > and off state with medication. > > attached is a pic to see... also, I have them on my site with a > description at > http://freethestemcells.com/index-4.html > > plus more styles at www.cafepress.com/getstemmed > > let me know what you think :) > > Sabrina Cohen > SabCo Productions > Advertising/Media Relations > 305.968.8024 > www.freethestemcells.com > www.cafepress.com/getstemmed > > > >> >> From: "rayilynlee" >> Date: 2006/04/03 Mon PM 07:19:05 EDT >> To: >> Subject: Parkinson's disease >> >> great idea Sabrina, do you have anything for Parkinson's disease? I am >> a "lifer" who is a ten year > prisoner. Survived ovarian cancer in 1980. Write and advocate constantly > for hESCR. >> Good luck >> Rayilyn Brown >> Surprise AZ 85374 >> [log in to unmask] >> > > -------------------------------------------------------------------------------- ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn --------------------------------- ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn