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do any of you folks out there who are active in an activist way know whether there is anywhere, any-how that someone or ones with PD have any input into the research process itself? I know there are folks working the funding end and the legislative end and the public awareness end, but actual input from the horse's mouth regarding the research on which the horse's life depends - is it happening anywhere? I know PDF is in the process of putting together a patient advisory council - anyone else? any advisory roles at NIH for real, live, actual PWP?

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