LISTSERV 16.0 - PARKINSN Archives

From: [log in to unmask] (Claire Salamon)
Date: Thu, 2 Mar 2006 04:32:42 -0500
To: [log in to unmask]
Subject: Fwd: RE: A-4493  cannot read /helppp
Message-ID: <[log in to unmask]>
Content-Type: Multipart/Mixed; Boundary=WebTV-Mail-2126-526
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)


--WebTV-Mail-2126-526
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit


----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

--WebTV-Mail-2126-526
Content-Disposition: Inline
Content-Type: Message/RFC822
Content-Transfer-Encoding: 7Bit

Received: from smtpin-3304.bay.webtv.net (209.240.205.162) by
        storefull-3353.bay.webtv.net with WTV-SMTP; Tue, 13 Dec 2005
        01:55:30 -0800
Received: from zixvpm.rwjuh.edu (zixvpm1.rwjuh.edu [12.0.237.153]) by
        smtpin-3304.bay.webtv.net (WebTV_Postfix+sws) with ESMTP id
        26C74E133 for <[log in to unmask]>; Tue, 13 Dec 2005 01:55:30 -0800
        (PST)
Received: from ZIXVMP13.win.rwjuh.edu (ZixVPM [127.0.0.1]) by
        Outbound.rwjuh.edu (Proprietary) with ESMTP id E8C404BDC8 for <[log in to unmask]>;
        Tue, 13 Dec 2005 03:53:31 -0600 (CST)
Received: from wsvr02.win.rwjuh.edu (wsvr02.win.rwjuh.edu [10.130.71.10])
        by zixvpm.rwjuh.edu (Proprietary) with SMTP id 18DD3A7B65 for <[log in to unmask]>;
        Tue, 13 Dec 2005 03:53:30 -0600 (CST)
Received: from sapp36.win.rwjuh.edu ([10.130.70.103]) by
        wsvr02.win.rwjuh.edu (SMSSMTP 4.1.9.35) with SMTP id
        M2005121304551106253 for <[log in to unmask]>; Tue, 13 Dec 2005
        04:55:11 -0500
Content-class: urn:content-classes:message
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Content-Transfer-Encoding: quoted-printable
X-MimeOLE: Produced By Microsoft Exchange V6.0.6603.0
Subject: RE: A-4493  cannot read /helppp
Date: Tue, 13 Dec 2005 04:54:25 -0500
Message-ID: <[log in to unmask]>
X-MS-Has-Attach:
X-MS-TNEF-Correlator:
Thread-topic: A-4493  cannot read /helppp
Thread-index: AcX/eVFxH0G1DY5cQrawsIP24c19xwAUSJSg
From: "Schaaf, Elizabeth" <[log in to unmask]>
To: "Claire Salamon" <[log in to unmask]>
X-Brightmail: Message tested, results are inconclusive

AN ACT concerning Parkinson's disease and supplementing Title 26 of the
Revised Statutes.

BE IT ENACTED by the Senate and General Assembly of the State of New
Jersey:

1.  This act shall be known and may be cited as the "Parkinson's Disease
Public Awareness and Education Act."

2.  The Legislature finds and declares that:
a.  Parkinson's disease is a debilitating, painful and incurable
neurological disorder of unknown origin that disrupts and can end the
lives of those who suffer from it;=20
b.  Parkinson's disease causes diverse symptoms, including rigidity,
slowness of movement, poor balance and tremors, which lead to an
impaired ability to walk, speak, swallow and even breathe, so that the
end result can be a clear mind trapped inside a body that has lost its
ability to function;=20
c.  The visible symptoms of Parkinson's disease are often mistaken to be
a normal part of the aging process;
d.  In addition, many people with the disease encounter precarious legal
and personal situations in which they are erroneously thought to be
under the influence of illegal or prescription drugs or alcohol due to
their movement and gait patterns;
e.  Parkinson's disease takes an enormous emotional, psychological and
physical toll on caregivers and families, overwhelming their lives;
f.  It has been estimated that 1.5 million Americans have been diagnosed
with Parkinson's disease, 50,000 more are diagnosed nationally each
year, and another 1.5 million persons have the disease but have never
seen a neurologist;
g.  Parkinson's disease requires the expenditure of some $25 billion per
year, including medical treatments, disability payments and lost
productivity;=20
h.  Medications can only control some of the symptoms of the disease and
only for uncertain periods of time;
i.  New Jersey, with the largest concentration of pharmaceutical
companies of any state in the nation and its top academic research
facilities, is a center for Parkinson's disease research and treatment;
j.  The "Morris K. Udall Parkinson's Disease Research Act of 1997,"
Pub.L.105-78, provides federal funding through the National Institutes
of Health for Parkinson's disease, and  April 11 has been proclaimed to
be World Parkinson's Day in order to recognize the need for more
research and help in dealing with the devastating effects of this
disease;
k.  This State, through the enactment of Joint Resolution No. 17 on
January 7, 2000, has designated April in each year as "Parkinson's
Disease Awareness Month" in New Jersey, and directs the Governor to
annually issue a proclamation calling upon the public officials and
citizens of the State to observe this month with appropriate activities
and programs;
l.  Increased public awareness and education are needed among health
care, social services, judicial, law enforcement and emergency medical
services personnel in order to better respond to the needs of
Parkinson's disease patients, their caregivers and families; and
m.  It is imperative for New Jersey to commit itself to actively support
such public awareness and education efforts throughout the State in
order to better meet the needs of its citizens who are suffering from
Parkinson's disease.

3.  As used in this act:
"Commissioner" means the Commissioner of Health and Senior Services.
"Department" means the Department of Health and Senior Services.
"Program" means the Parkinson's disease public awareness and education
program established pursuant to this act.

4.  The Commissioner of Health and Senior Services shall establish a
Parkinson's disease public awareness and education program.
a.  The purpose of the program shall be to promote public awareness of
Parkinson's disease and the value of early detection and possible
treatments, including the benefits and risks of those treatments.  The
Department of Health and Senior Services may accept, for that purpose,
any special grant of monies, services or property from the federal
government or any of its agencies, or from any foundation, organization
or medical school.
b.  The program shall include the following:
(1)  Development of a public education and outreach campaign to promote
Parkinson's disease awareness and education, including, but not limited
to, the following subjects:
(a)  the cause and nature of the disease;
(b)  diagnostic procedures and appropriate indications for their use;
(c)  lifestyle issues relating to how a person copes with Parkinson's
disease, including, but not limited to, nutrition, diet and physical
exercise;
(d)     environmental safety and injury prevention; and
(e )  availability of Parkinson's disease diagnostic and treatment
services in the community;
(2)  Development of educational materials to be made available to
consumers through local boards of health, physicians, hospitals and
clinics;
(3)  Development of professional education programs for health care
providers to assist them in understanding research findings and the
subjects set forth in paragraph (1) of this subsection;
(4)  Development of educational programs for other personnel, including
judicial staff, police officers, fire fighters and social services and
emergency medical service providers, to assist them in recognizing the
symptoms of Parkinson's disease and understanding how to respond to the
needs of persons with the disease in the course of performing their
duties, including dissemination of the informational booklet prepared
pursuant to section 5 of this act; and
(5)  Development and maintenance of a list of current providers of
specialized services for the diagnosis and treatment of Parkinson's
disease.  Dissemination of the list shall be accompanied by a
description of diagnostic procedures, appropriate indications for their
use, and a cautionary statement about the current status of Parkinson's
disease research and treatment.  The statement shall also indicate that
the department does not endorse specific Parkinson's disease programs or
centers in this State.

5.  a.  The department, in consultation with the New Jersey Chapter of
the American Parkinson Disease Association and the Movement Disorders
Center at the Robert Wood Johnson University Medical Group, UMDNJ Robert
Wood Johnson Medical School, shall prepare an informational booklet in
English and Spanish which provides, in a manner easily understandable by
a patient or other non-health care professional, information about the
symptoms and treatment of Parkinson's disease.  The booklet may contain
any other information that the commissioner deems necessary and may be
revised by the department whenever new information about Parkinson's
disease becomes available.
b.  The department shall make a supply of the booklets available to all
licensed health care facilities engaged in the diagnosis or treatment of
Parkinson's disease and to those personnel described in paragraph (4) of
subsection b. of section 4 of this act, as well as to health care
professionals, community health centers and members of the public upon
their request.  The department shall publicize and make available the
booklet to the maximum extent possible, and shall make available
electronically on its Internet website in English and Spanish the
information contained in the booklet.

6.  The Commissioner of Health and Senior Services, pursuant to the
"Administrative Procedure Act," P.L.1968, c.410 (C.52:14B-1 et seq.),
shall adopt rules and regulations to effectuate the purposes of this
act.

7.  This act shall take effect on the 180th day following enactment,
except that the Commissioner of Health and Senior Services may take such
anticipatory administrative action in advance as shall be necessary for
the implementation of the act.

        STATEMENT
This bill establishes a Parkinson's disease public awareness and
education program in the Department of Health and Senior Services
(DHSS).
The program is to include the following:
C       Development of a public education and outreach campaign to
promote Parkinson's disease awareness and education, including, but not
limited to, the following subjects:
--  the cause and nature of the disease;
--  diagnostic procedures and appropriate indications for their use;
--  lifestyle issues relating to how a person copes with Parkinson's
disease, including, but not limited to, nutrition, diet and physical
exercise;
--  environmental safety and injury prevention; and
--  availability of Parkinson's disease diagnostic and treatment
services in the community.
C       Development of educational materials to be made available to
consumers through local boards of health, physicians, hospitals and
clinics.
C       Development of professional education programs for health care
providers to assist them in understanding research findings and the
subjects set forth in the bill.
C       Development of educational programs for other personnel,
including judicial staff, police officers, fire fighters and social
services and emergency medical service providers, to assist them in
recognizing the symptoms of Parkinson's disease and understanding how to
respond to the needs of persons with the disease in the course of
performing their duties, including dissemination of the informational
booklet prepared pursuant to the bill.
C       Development and maintenance of a list of current providers of
specialized services for the diagnosis and treatment of Parkinson's
disease.  Dissemination of the list is to be accompanied by a
description of diagnostic procedures, appropriate indications for their
use, and a cautionary statement about the current status of Parkinson's
disease research and treatment.  The statement is to also indicate that
DHSS does not endorse specific Parkinson's disease programs or centers
in this State.
In addition, the bill directs DHSS, in consultation with the New Jersey
Chapter of the American Parkinson Disease Association and the Movement
Disorders Center at the Robert Wood Johnson University Medical Group,
UMDNJ Robert Wood Johnson Medical School, to prepare an informational
booklet in English and Spanish which provides, in a manner easily
understandable by a patient or other non-health care professional,
information about the symptoms and treatment of Parkinson's disease.
The booklet may contain any other information that the commissioner
deems necessary and may be revised by DHSS whenever new information
about Parkinson's disease becomes available.
DHSS is to make a supply of the booklets available to all licensed
health care facilities engaged in the diagnosis or treatment of
Parkinson's disease and to those personnel described in the bill, as
well as to health care professionals, community health centers and
members of the public upon their request.  DHSS is to publicize and make
available the booklet to the maximum extent possible, and to make
available electronically on its Internet website in English and Spanish
the information contained in the booklet.
The bill takes effect on the 180th day following enactment, but
authorizes the Commissioner of Health and Senior Services to take
anticipatory administrative action in advance as necessary for its
implementation.

                            =20

"Parkinson's Disease Public Awareness and Education Act."

-----Original Message-----
From: Claire Salamon [mailto:[log in to unmask]]=20
Sent: Monday, December 12, 2005 7:08 PM
To: Schaaf, Elizabeth
Subject: A-4493 cannot read /helppp


E--    can you resend this to me.   i cannot see message nor get into
attachment.  AND I AM SO EXCITED.      C


----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

--WebTV-Mail-2126-526--