The Parkinson Alliance has put together a website on DBS that will answer
any question you can think of to ask.....
go to:
http://DBS-STN.ORG
THANK YOU, PARKINSON ALLIANCE!
Nina
"Circumstances determine our lives, but we shape our lives by what we make
of our circumstances."
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of Carol Kerr
Sent: Friday, November 24, 2006 11:44 AM
To: [log in to unmask]
Subject: DBS SURGERY
I am considering having DBS surgery and am interested in hearing from anyone
who has had it done. I am 54 uears old and have been dx for almost 5 uears.
I have virtually no tremor, but have extreme stiffness, bradykinesia, and
balance problems. I am falling about every other day. i take sinemet every
four
hrsl. (up from every 5 hrs six months ago ) . I feel it wearing off after
about 3 1/2 hours now. I alaso take a cr at night.
Some things I am intersted iin knowing
if any of your symptoms were similar to mine what difference did it
make?
(also with relation to speech , nandwriting
how involved has your neurologist been
are there any other specialists on your "team" or that you wish you had
involved
anything you wish you had asked about before hand
has anybody done it frameless
Thanks for any input
carol
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