I am considering having DBS surgery and am interested in hearing from anyone
who has had it done. I am 54 uears old and have been dx for almost 5 uears.
I have virtually no tremor, but have extreme stiffness, bradykinesia, and
balance problems. I am falling about every other day. i take sinemet every four
hrsl. (up from every 5 hrs six months ago ) . I feel it wearing off after
about 3 1/2 hours now. I alaso take a cr at night.
Some things I am intersted iin knowing
if any of your symptoms were similar to mine what difference did it make?
(also with relation to speech , nandwriting
how involved has your neurologist been
are there any other specialists on your "team" or that you wish you had
involved
anything you wish you had asked about before hand
has anybody done it frameless
Thanks for any input
carol
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