Alan,
I have had PD since 1988, age 35, now age 52, and I agree generally
with your interpretation of "On" and "Off". What I would like to know is
what medication regime are you on that gives you 12 straight hours "On" ?
That is remarkably good, the best I can achieve, on 3 doses a day, is 2 and
a half to 3 hours per dose, decreasing to 1 hour per dose with plenty of
unpleasant dyskenesia inbetween doses.
Best Wishes,
Nigel Harland
----- Original Message -----
From: "Alan Hahn" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 09, 2006 6:31 PM
Subject: ons and offs
>I was diganozed with PD 14 years ago, I'm now 57. One of the things I often
>wonder about is what are the different types of on and off periods
>experienced by PD people?. For example if someone is ON does that mean
>they would appear and function normaly 12 out of 16 waking hours during
>the day, does OFF mean a PD person is paralized in a chair for 12 hours a
>day.
>
> For example, yesterday I got out of bed at about 7am, I consider myself
> OFF, I needed a cane to walk around (very stiff and slow) did some house
> hold choures, if the phone rang and I was more than 15 feet away there is
> a good chance I would not be able to answer the phone with in four rings.
> At 10 am I began taking my normal drugs for the day. At about 11:30 am
> they kicked in, meaning I was what I considered (ON) normal and I stayed
> that way until 10:30 pm and went to bed. During that time I went to the
> store, drove my car and went to a fast food place for dinner.
>
> I was ON 12 of 16 waking hours.
>
> It was a good day. On a not so good day I may be OFF 8 hours or more.
>
> Going back to my question, what does a PD patient having PD for 5 years
> or more consider OFF or ON?
>
>
>
>
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