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That day was unusual, the norm is more like 4-5 hours on then off 1-2 and back on 3-5. I try to do some sort of exercise in the morning for about an hour before taking any meds, they seem to work better after the exercise, just walking up and down the stairs for a half hour is enough.. I have the same food problems others talk about, a big meal of any kind will shut me down with in 1 - 2 hours, I've become a nibbler, small snacks all day, a more normal meal about 2-3 hours before going to bed. I've been on just about every drug at one time or another. What seems to work best for me (this not a recommendation) is a combination of sinemet, sinemet CR, comtan and parcopa. I fne taking smaller doses of the meds more often, limits the dyskenesia problem. Nigel Harland <[log in to unmask]> wrote: Alan, I have had PD since 1988, age 35, now age 52, and I agree generally with your interpretation of "On" and "Off". What I would like to know is what medication regime are you on that gives you 12 straight hours "On" ? That is remarkably good, the best I can achieve, on 3 doses a day, is 2 and a half to 3 hours per dose, decreasing to 1 hour per dose with plenty of unpleasant dyskenesia inbetween doses. Best Wishes, Nigel Harland ----- Original Message ----- From: "Alan Hahn" To: Sent: Saturday, December 09, 2006 6:31 PM Subject: ons and offs >I was diganozed with PD 14 years ago, I'm now 57. One of the things I often >wonder about is what are the different types of on and off periods >experienced by PD people?. For example if someone is ON does that mean >they would appear and function normaly 12 out of 16 waking hours during >the day, does OFF mean a PD person is paralized in a chair for 12 hours a >day. > > For example, yesterday I got out of bed at about 7am, I consider myself > OFF, I needed a cane to walk around (very stiff and slow) did some house > hold choures, if the phone rang and I was more than 15 feet away there is > a good chance I would not be able to answer the phone with in four rings. > At 10 am I began taking my normal drugs for the day. At about 11:30 am > they kicked in, meaning I was what I considered (ON) normal and I stayed > that way until 10:30 pm and went to bed. During that time I went to the > store, drove my car and went to a fast food place for dinner. > > I was ON 12 of 16 waking hours. > > It was a good day. On a not so good day I may be OFF 8 hours or more. > > Going back to my question, what does a PD patient having PD for 5 years > or more consider OFF or ON? > > > > > --------------------------------- > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > Access over 1 million songs - Yahoo! Music Unlimited. > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn --------------------------------- ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn Any questions? Get answers on any topic at Yahoo! Answers. Try it now.