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Nina I like the analogy of life being a card game. I was a good bridge player, but in the beginning of PD I shook more if I got a good hand. Now I can't hold the cards, shuffle or deal. I quit playing several years ago, so I don't know if my tremors would break through the neurostimulators or not. But it is true, having PD is being dealt a hand with very few high cards. But there are worse diseases. Ray ----- Original Message ----- From: "Nina P. Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, January 29, 2007 11:43 PM Subject: Re: Question from a "lurker" When I was diagnosed twenty one years ago my neurologist said with all the research being done and the new drugs, that if I had to have a neurological disease, Parkinson’s was the one to have. Am I lucky or what? I’ve bought raffle tickets, played bingo, entered all kinds of contests and have never won anything; but for some unknown reason my ticket to join the Parkinson Parade was picked. And it changed my life! For some reason, when I am asked “How Parkinson’s has affected my life, I seem to have a problem coming up with a quick answer. I tried to figure out why that should be such a hard question for someone who has lived with Parkinson’s and worked for the Parkinson’s community for 21 years. Over the years my symptoms have multiplied and worsened. Because there is not a day that goes by that allows me to forget I have Parkinson’s, I often reflect on a story that makes me smile and reminds me of the difference in being a pessimist or an optimist. A young boy, placed in a room filled full with toys, sat in the middle of the room without touching one of them. There were so many he couldn’t decide which to play with. A second little boy was placed in a room full of horse manure. He dove in and tossed it one way, then another. After about an hour, as he was dragged from the room, he was heard crying, “Wait…with all that horse manure, there must be a pony in there somewhere!” My way of living with a body that reminds me every three hours to take medications is to keep looking for the pony. Because Parkinson’s is usually described as “progressive,” “debilitating” and “incurable” I know the problems I face today will seem inconsequential tomorrow, but I refuse to feel “debilitated.” I prefer not to dwell upon the negatives that make my life difficult, but rather upon the positives that make my life full. · While taking medication every two hours may force me to live by the clock, I’m grateful I live in a time when there are medications available. Without the chemical camouflage from the cocktail of medications I take, I wouldn’t be able to walk at all. · Although my symptoms first forced me to give up tennis and skiing and then later, give up my walker for a scooter when the medications don’t work, I am, nonetheless grateful to have the mobility. · Although I hate seeing a photo or video of myself with my body contorted or moving abnormally, at least it opens an opportunity to educate someone about Parkinson’s. · Although I’m afraid I’ll lose my balance and fall when I lean over for a hug, I love that someone wants to give me a hug. I could go on, but you get the idea. I guess you could say that Parkinson’s has brought facets to my life that I never could have foreseen– while it has done a lot to me, it’s done a lot for me. There is no doubt that Parkinson’s has changed my life. It would be foolish of me to say I’m lucky that I have an incurable, progressive, degenerative disease, but… ·Without Parkinson’s, I wouldn’t write HAPS monthly newsletter for 2300, which has given me a personal way to reach out and touch thousands and in return, so many have reached back and touched me. Without Parkinson’s, I would have missed the opportunity of meeting some of the most courageous, inspiring, amazing people I know. Without Parkinson’s, I would never have had the PASSION or opportunity to fight for and represent the Parkinson community with legislators in Austin and Washington, or help co-found two organizations involved with medical research that give the hope of removing the word “incurable” from the description of Parkinson’s. And with Parkinson’s, the love and devotion that Joe, my husband of forty-four years, and I have shared has become even greater because of our commitment to fight the fight and work toward that common goal. Life is similar to a game of cards. We have no control over the hand dealt us. However, we do have control over the way we play the hand. There's no point in blaming the dealer for a bad hand. The trick is to play it out with all the skill and determination we possess. I’m not smart enough to find a cure for this disease, but I am determined to do my best to make it possible for some researcher somewhere to find a cure. In short, I decided that if I have to ride in the Parade, I’d prefer to do it on a pony! On Jan 8, 2007, at 10:26 AM, Dick Beaumont wrote: > You said "Parkinson's Disease Is a Curse and a Blessing by Kate Kelsall" > in your message that was posted on January 06, 2007 and presented on > this list by rayilynlee (sorry, I don't know your last name) on Sat > 06/01/2007. > > I mentioned that I am a "lurker" since I do not normally respond to any > messages, I just read them. My knowledge of this disease has been > attained by internet research and this list. I was diagnosed as having > PD in February of 2005, just about two years ago. Fortunately, my PD is > slowly progressing and my depression seems to be corrected. I live in > Keswick Ontario and work as a technical writer in Richmond Hill. At 67 > years young, married to a wonderful woman (Helene) and employed doing > the work I love, I did not know what my sentence meant to me and my > future (and still not sure). > > Question - What is the URL (address) of your Blog. I was moved by your > observations and wish to read more. > > Dick Beaumont > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn