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Hi, John. Amantadine works for most people...not everyone...but it was a miracle drug for David. His shoulder and leg often looked like they had motors attached. It was unnerving for both of us and anyone else around. At first, David only needed one pill/day, but because it has a tendency to lose efficacy, after awhile he used 2/day...only when the dyskinesias started...not as a routine drug ( I know some PD sufferers who use it 3x/day.). Plus, it has a bonus feature of helping to prevent some flu infections! David never had any side effects of the drug. Consider getting a scrip for Amantadine sooner rather than later. I like the compassionate sound of your neuro. You're lucky to have found him. Such physicians are rare, unfortunately. Bev ----- Original Message ----- From: "John Svensk" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, February 17, 2007 8:05 AM Subject: [SPAM] SV: Re-introduction: John Svensk, the parkie formerly knownasJohn Qvist > Hi Bev, > No I haven't tried it yet, but my neuro has said that he is considering > it. > I'll mention it when I see him the next time. I bashed my left wrist into > my > office desk yesterday, and on the day before that, and unfortunately in > the > exact same spot, too. If ya gotta do it, don't do it half-heartedly! ;-) > - I trust his judgement completely, something I unfortunately can't say > about some of my previous ones. Sven is the first neuro I've heard say > that > his first "sanity check" when selecting a course of treatment is "would I > do > this if it were my own son"? > > /John > > -----Ursprungligt meddelande----- > Från: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] För Beverly Bashe > Skickat: den 16 februari 2007 21:48 > Till: [log in to unmask] > Ämne: Re: [SPAM] Re-introduction: John Svensk, the parkie formerly known > asJohn Qvist > > John, have you tried Amantadine, the anti-flu drug, which can be used to > stop dyskenisias. My husband, David, used it up to 3x/day depending upon > the severity of the dyskenisias until he had his DBS surgery. The DBS > stopped the dyskenisias totally. If you haven't tried Amandadine, > consider > asking your doctor. > > BTW, a dear, dear friend of mine, Ylva Lindroth is a rheumatologist in > Sweden. She lives in Lund, but I'm not sure where her practice is. > > Bev Bashe > ----- Original Message ----- > From: "John Svensk" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, February 14, 2007 2:12 AM > Subject: [SPAM] Re-introduction: John Svensk, the parkie formerly known > asJohn Qvist > > >> Hi, my name is John Svensk, the list old-timers may remember me by the >> name >> John Qvist. I'm 38, have experienced symptoms of PD since I was 18, and >> was >> diagnosed at 26. I live in Viksjö, a suburb of Stockholm, Sweden, >> together >> with my lovely wife Veronica. Veronica and I got married in 2004 and >> that's >> when I changed my name; I decided to take my wife's family name. I still >> work 75% part time as a programmer at a small government agency (150 >> people, >> working with different aspects of higher education). In my spare time I >> compete in what I think Americans call "bullseye pistol", slow fire >> precision shooting at paper targets with ten rings at a distance of 25 or >> 50 >> yards/meters, each target gets five shots in six minutes, and a >> competition >> can have six, eight or twelve targets per competitor. Half the fun is >> producing respectable scores while dyskinetic: other competitors just >> can't >> believe their eyes, hahaha. The trick is that I have found a position >> that >> keeps the involuntary movements at a minimum when I concentrate and >> relax. >> After that, it's just a question of concentrating on the front sight, >> aiming >> carefully and squeeeeezing the trigger slowly. It is a sport that helps >> me >> stay sane by forcing me to focus on something else than muscle pains, >> cramps, tremors, memory problems, flailing arms and shuffling feet. >> >> Take care, see you later! >> /John >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn