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You really want input ? 1. Permanent blazing anger, but an impassive face so people think I'm calm. 2. Thank God I never had kids - I can't pass it on genetically. 3. Worry about the future - I'm a batchelor, so no carer obvious, not that I'd wish it on a spouse. 4. You do get to meet some fabulous people because of it. Amanda Phillips In a message dated 22/04/2007 07:00:44 GMT Standard Time, [log in to unmask] writes: Hello Listserv members: I frequently am asked to speak to different groups about what it's like to live with Parkinson's. This includes what it's like for caregivers, also. Years ago, when I first started this type of advocacy, I collected thoughts from people with Parkinson's and their families. I need to update my comments. Could you send your comments here? Just put the Need your input in the subject. By posting your comments, you are giving me permission to use your comments for my presentations. Also, give me how you want to identify yourself in the presentation. For example, your initials or first name and what area you are from. For example, sign JBP in Wyoming, etc. Here is the requested format: What it's like to live with Parkinson's: (Only 1-2 sentences) Example: It's like being in a runaway car; you know there's a cliff up ahead, but you can't stop it. From: JPP in Wyoming Please let me know this within the next week - I promise to report back how everything goes. THANKS SO MUCH! Hope to see you at the Unity Walk in New York City April 28! Peggy ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn