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Hello Listserv members:

I frequently am asked to speak to different groups about what it's like to
live with Parkinson's.  This includes what it's like for caregivers, also.
Years ago, when I first started this type of advocacy, I collected thoughts
from people with Parkinson's and their families.  I need to update my
comments.

Could you send your comments here?  Just put the Need your input in the
subject.  By posting your comments, you are giving me permission to use your
comments for my presentations.  Also, give me how you want to identify
yourself in the presentation.  For example, your initials or first name and
what area you are from.  For example, sign JBP in Wyoming, etc.  Here is the
requested format:


What it's like to live with Parkinson's:  (Only 1-2 sentences)
  Example:  It's like being in a runaway car; you know there's a cliff up
ahead, but you  can't stop it.

From:  JPP in Wyoming



Please let me know this within the next week - I promise to report back how
everything goes.  THANKS SO MUCH!  Hope to see you at the Unity Walk in New
York City April 28!

Peggy

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