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and I so far have never had the freezing experience, just very slow motion. Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: "Amanda Phillips" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, June 22, 2007 5:02 PM Subject: Re: barking up the wrong tree > In a message dated 22/06/2007 07:02:32 GMT Standard Time, > [log in to unmask] > writes: > > Amanda, I used to shake more when involved in music...singing or playing > the > piano. Weird, just the opposite from you...wonder why. > Ray > Rayilyn Brown > Board Member AZNPF > Arizona Chapter National Parkinson's Foundation > [log in to unmask] > ----- Original Message ----- > From: "Amanda Phillips" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, June 20, 2007 3:37 PM > Subject: Re: barking up the wrong tree > > >> In a message dated 20/06/2007 07:01:44 GMT Standard Time, >> [log in to unmask] >> writes: >> >> Steve >> >> I have long failed to understand the role of dopamine in PD but then >> my >> education has been in the social, not biological, sciences. >> >> I ask: >> >> How do they know I'm lacking dopamine when there is no blood test to >> measure >> how much I have? (and I don't want to wait til I die to find out) >> >> Why if lack of dopamine caused my tremors do leads in my brain that >> constantly transmit electric impulses from neurotransmittters in my >> chest >> stop them? And how was DBS able to immediately straighten out my >> dystonic >> foot? Since DBS 4 ago years I've kind of plateaued except for my >> voice. >> >> I don't think the disease process is understood at all, even though >> they >> say it is, but then what do I know? >> >> And I don't buy that you've lost 80% of your dopamine before you >> become >> symptomatic. If lack of it is the cause, how do you function so long >> without the right amount whatever that might be? >> >> Why do PD meds affect people so differently? A few years ago Edith >> Love >> and >> Mario attempted to develop a data base to share info. We need >> something >> at >> least nationally. >> >> Ray >> >> Rayilyn Brown >> Board Member AZNPF >> Arizona Chapter National Parkinson's Foundation >> [log in to unmask] >> ----- Original Message ----- >> From: "Steve Rack" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Monday, June 18, 2007 8:31 PM >> Subject: barking up the wrong tree >> >> >>> Ray I'm going to go out on a scary limb here. Dopamine is a >>> neuro-transmitter, one of many identified in our brain. Highly >>> specialized chemicals these - each with a specific task - except (it >>> seems) dopamine. Dopamine is the transmitter of mood and movement. Or >>> is it? I don't know of another dual purpose neuro-transmitter. Do >>> you? Perhaps there's a fundamental reason that sinemet and the >>> agonist drugs give us strange side effects before losing what >>> effectiveness they had and failing entirely. Have our researchers >>> been barking up the wrong tree? >>> -- >>> Steve Rack >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> Brattleboro VT >>> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> >> >> Why do I stop shaking when really absorbed in playing music ? There >> isn't >> much time for brain chemistry to change - the doctors just said 'you >> must >> be >> mistaken -no\I'm not. >> >> How come only humans get pd ? A matter of intelligence ? if so, >> what >> role >> exactly does intelligence play in developing PD ? >> >> >> >> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > > Concentration ? I love music but have no talent so must use obstinacy > instead, or maybe it's just different brain configurations. > Like you I'm not convinced about dopamine, 'cos I don't see how it > accounts > for the variations - and what's with the freezing in doorways ( a bloke in > my > local support group can't go through glass doors) or forgetting how to go > from kneel to stand ? > The doctors probably can't measure it before or after death. > > > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn