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Kay,
We've had drug company reps display information at our local Parkinson's Associations yearly symposium, but I don't recall any of them doing a presentation at a symposium or a support group meeting. It seems each company must have their own guidelines.

If you are looking for information on Nupro, i suggest checking the Parkinson Pipeline Project website. We are a grassroots patient  group that has been collecting informaiton on PD treatments in the pipeline, and advocates for better patient representation in the drug development process at all levels.

start at www.pdpipeline.org

Under "Focus on Therapies" click on "Fda approves Nupro patch" for this article and then on the DB icon on the same line for  full information about the treatment. 

For full access to the complete database - click on the Database Access Tab at the top of the page. You willl be asked to sign the Guestbook and register

Please let me know if you have any questions or would like to learn more about the Parkinson Pipeline Project
Linda Herman
www.pdpipeline.org

-- Kay Mixson Jenkins <[log in to unmask]> wrote:
Dear Ms. Mixson Jenkins:
Thank you for contacting the UCB, Inc. Medical  Affairs Department with your 
request for
information regarding Neupro®  (rotigotine transdermal system). Specifically, 
your message
states, “Our  support groups in very interested in having someone from your 
company  speak
at our July 18, 2007 or Aug 1, 2007, meeting about Neupro. We meet at  1:00 
pm at
Effingham County Hospital in Springfield, GA.”

Neupro® is indicated for the treatment of the signs and symptoms of  
early-stage idiopathic
Parkinson’s disease. Please review the enclosed  package insert for approved 
indication and
complete prescribing information.  (are they assuming we are old onset)

Unfortunately, our company policy prohibits employees from speaking to  
patient groups. ( OK, they cant talk to us but they  want us to use their product)
 
 We suggest that you contact one of the following organizations to  find a 
local expert: OK, contact the major PD organizations to find a local  expert, Is 
that a doctor who they will pay $500.00 to speak  about their product or 
would that be someone like Michelle Lane who started the  patch in 2002 for 
Schwarz Pharma and was one of the first to do so. Think they  will pay her?
 
Had to let off some steam, I hope one of their reps are in Chicago next  week 
I will show him this letter.
 
Kay




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