Charlie Black's DBS Surgery group can be found at:
http://health.groups.yahoo.com/group/DBSsurgery/
There is a lot of great information about DBS that passes through there.
Warren
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of William P. Taggart
Sent: Sunday, July 15, 2007 12:12 PM
To: [log in to unmask]
Subject: Re: DBS - yes or no
Les,
Here is a site I found through a Google Search ~ >
http://www.dbs-stn.org/
Perhaps this will help...
ATB, Bill
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of george bousliman
Sent: Friday, July 13, 2007 11:02 AM
To: [log in to unmask]
Subject: Re: DBS - yes or no
Les,
I had DBS about 10 years ago. This was when DBS was almost
experimental. It's helped me a lot-- no more tremors, I do have
dystonia and fatigue, but I understand today's version of DBS may be
able to deal with these symptoms,
My suggestion is that you join the DBS list serve, where you can get
a ton of good info. I no longer have the address, but the guy who
owns the list is Charles Black. As I recall, he's from LA.
Good luck.
george l. bousliman
[log in to unmask]
On Jul 12, 2007, at 2:37 PM, Les Combs wrote:
> I am 60 years old and was diagnosed in 1999 with PD. I have tension
> in my jaw that keeps my mouth open, spasm in my back as the day goes
> on. I get tired by the afternoon and am exhausted by 6 or
> 7 pm. I shuffle when my symptoms are at the worst and have trouble
> speaking well.
>
> My neurologist has recommended DBS. If you've had DBS, tell me about
> your experience. AND WHO DO YOU RECOMMEND. I live in Las Vegas, but
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
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> In the body of the message put: signoff parkinsn would travel to CA or
> AZ for the surgery.
>
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