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The Bill of Rights are excellent.

  A big Thanks to all who wrote them and participated.

  Lorraine  Jeffe

rayilynlee <[log in to unmask]> wrote:
  Rights??? what are those???
Rayilyn Brown
Board Member AZNPF
Arizona Chapter National Parkinson's Foundation
[log in to unmask]
----- Original Message -----
From: "[log in to unmask]"
To:

Sent: Monday, September 24, 2007 8:56 PM
Subject: Your Bill of Rights


The Parkinson Pipeline Project and other Interested PWPs have completed a
new Parkinson's Clinical Trial Participants Bill of Rights. With all the
concern about drug safety and safety in clinical trials, we think this is a
timely issue. Please read it and let us know what you think.

Background Information at:
A New Era in Collaboration: The Road to a Parkinson's Clinical Trial
Participants' Bill of Rights
http://www.pdpipeline.org/advocacy/anewera.htm

"Clinical trials are the stepping-stones to discovering new, more effective
treatments for Parkinson's disease. Research and approval of new treatments
cannot be conducted without human volunteers, who agree to take substantial
risks in hopes of improving their health and their lives, furthering
scientific knowledge, and ultimately finding a cure for Parkinson's."


The Parkinson's Clinical Trial Participants' Bill of Rights is at:
http://www.pdpipeline.org/advocacy/rights.htm

"The purpose of the Parkinson's Clinical Trial Participants' Bill of Rights
is to:
"Acknowledge the rights people with Parkinson's (PWP) have when
participating in clinical research trials. "Educate everyone with a direct
interest in these trials about standards that will improve the overall
clinical research process, increase clinical trial participation, and help
speed discovery and approval of treatments for Parkinson's disease."
Linda


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