Ellen,
We discontinued the use of Botox. Prior to the decision, I had phoned my mom's Neurologist and had reported that my mom had
numerous issues that may be contributed to the Botox such as, difficulty breathing (up to 30 minute period of wheezing, struggeling) and on numerous occasions, swelling on her face, blurred vision and lethargy. She also had a more difficult time talking, her speech therapist ended her sessions because of the this. Her Neuro's rep, the RN, basically denied any adverse side effects due to the Botox to me,.. stated "Botox would not interfere" in my mom's breathing, would not contribute to any aspiration"....
I countered with the information from the Botox site and listed the harmful side effects, all of which my mom was experiencing. Why the Denial?
Also, my mother has advanced Parkinson's, broke her Sternum and has several fracture as a result of a bad fall....
Why would her Neurologist prescribe Botox in the first place when she is at risk because of the longevity of her disease and the injuries to her sternum/spine?
Also noteworthy, my father and I have observed ast he Botox wears off , there has been fewer breathing issues and no moreswelling on her face. She also is swallowing better and is more responsive cognitively, in better spirits.
Will keep you posted!
Thank you for your thoughtful and informative responses.
We so appreciate the support from this post.
with gratitude,
tess owens, daughter of Arzell Owens
"Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.
maya angelou
On Saturday, October 20, 2007, at 11:02PM, "Ellen Luhman" <[log in to unmask]> wrote:
>I just read in my Worst Pills Best Pills Newsletter that the EU's European
>Medicines Agency warned about serious adverse events caused by Botox. "The
>main danger of concern was that the toxin was spreading from the original site
>of injection to distant places in the body. The adverse events caused by
>this, some of which were fatal, include muscle weakness, dysphagia and
>pneumonia." The article mentions that the EMA required the Botox manufacturers to
>provide a "Dear Doctor" letter in which one phrase struck me:"the need forr
>extreme caution in vulnerable patients, i.e.,those with neurological disorders or
>a history of dysphagia or aspiration."
>
>hope this is helpful.
>
>Ellen
>
>
>
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