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I think you are both right. Jean Burns -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of Amanda Phillips Sent: Monday, November 12, 2007 4:59 PM To: [log in to unmask] Subject: Re: Research in Arizona. I agree with Ray. I fix software bugs for a living - you can't cure a software fault until you're quite clear about the circumstances that caused it. In this respect I suspect brains are the same. Amanda Quoting rayilynlee <[log in to unmask]>: > Jean and List Members: > > I had an encounter with Dr. Joe Rogers last year. I was referred to him by > Bob Stump, my state rep. > > Although his research sounded to me like what Dr. Levesque of Cedars Sinai > did with Dennis Turner's brain cells over 8 years ago, he was unfamiliar > with it when I asked him about it. Strange, it was a big deal. > > To remind you-all Levesque took Turner's brain cells during a DBS surgery, > "cultivated" them and put them back in Turner's brain and he was supposedly > symptom free until about 2004 when his PD returned with a vengeance. I > called him on 3-24-06 and he confirmed this, but since refuses to shed more > light on this subject. Last I heard he was still being touted as a "cure" > by the Family Research Council which opposes embryonic stem cell research. > > Jean, this is all documented in Yvonne Perry's book Right to Recover that I > gave you at our luncheon meeting several months ago. > > Initially, Rogers seemed congenial and fair-minded but got mad at me when I > asked Turner by email to clarify his condition. Rogers later apologized to > me but I never did visit his lab, feeling very unwelcome. Rogers and the > Arizona state legislature oppose ESCR. > > I concluded that if Turner's temporary improvement was due to the stem cell > implantation and not DBS, his PD came back because the same disease process > that killed his dopamine producing cells in the first place was still > active. It led me to believe that if this is true, any kind of stem cell > replacement therapy or treatment is only going to be temporary unless the > cause of PD is addressed. > > I am also surprised to hear about the MJFox grant that you can't find. > Please keep us informed about this. This sounds "suspicious" to me. Dr. > Levesque's Phase II never did go into effect (as far as I know) even though > the FRC made false claims about it. Talk about "mad" scientists!!! I don't > think I want to be involved in Roger's trials. I felt he was fishing for > subjects when we had our exchange. Bob Stump may have gotten his bill > passed that provides $ for adult stem cell research. This seems to me to be > a more likely grant source than MJFox. > > Ray > > > > > > Rayilyn Brown > Board Member AZNPF > Arizona Chapter National Parkinson's Foundation > [log in to unmask] > ----- Original Message ----- > From: "jean" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, November 11, 2007 3:41 AM > Subject: Research in Arizona. > > > > At the Power Over Parkinson's Conference in Phoenix, November 10, 2007, > > Dr. > > Joseph Rogers, Sun Health Research Institute, talked about how he had > > succeeded in growing dopamine producing neurons from human stem cells - > > from > > adult stem cells taken from human brains. > > > > Dr Rogers and his team worked with donated progenitor cells gotten human > > brains. These cells were actually excess tissues gotten after some people > > had gone through brain surgery. Rather than the surgeons tossing these > > cells > > (given with permission from the people who had undergone brain surgery), > > Dr > > Rogers and his team had these human brain cells available for experiments. > > > > They found progenitor adult stem cells in the brain tissue. And from these > > Dr Rogers and his team grew neural - dopamine producing stem cells. We saw > > amazing photos of both types of cells. > > > > His next stem cell experiments will be on primates. And if that testing is > > successful, then he and his team will begin trials on humans -with initial > > brain surgery on the PWPs to retrieve some brain cells. Those cells will > > be > > used to grow dopamine-producing neurons. And then later there will be > > surgery to implant those autologous cells in the PWP's brain. > > > > I was told that he has received a 3.5 million grant from the MJFox > > Foundation, but I couldn't find any reference to it on the MJFox website. > > I'll keep trying using other search terms. > > > > He believes there will be a cure in his lifetime (he looks like he is in > > his > > 60s). > > > > Jean Burns > > 480.883.3285 > > www.pdplan4life.com > > > > order holiday cards on www.azapda.org > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------- This mail sent through http://www.ukonline.net ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn