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Angela, is your daughter seeing a movement disorder specialist??  Are you
part of a support group?

The reason I ask both questions is because my husband had YOPD and we
floundered for a long time.  After he retired, he finally decided to join a
support group.  We discovered through the members that the very best
treatment for PD was a mere 20 minutes away from our house - none of our
neurologists had ever suggested a referral to that clinic.

Mirapex is one of several drugs now used to treat PD.  All of these drugs
are routinely prescribed to control symptoms.  If your daughter's doctor
refuses to give her the drug, get another doctor.  There is no excuse for
any neurologists not to try a variety of meds in order to control her
symptoms.
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God bless
Mary Ann (CG Jamie 68/28 with PD, died 11/20/07)
www.bentwillowfarm.org

> Regardless of these varying opinions of mirapex, i can assure you that ANY
> help would be appreciated when doctors ping-pong the young onset back and
> forth and the job loss, friends loss, drooling, falling, and wondering
> where she is, it terrifying. I know the drug has side effects, but stage 3
> symptoms are absolutely merciless, and I wish I could get more aggressive
> treatment for her in this country. Many Drs oversease seem to know that
> head and neck injuries cause PD, but in the USA, they act like parkinsons
> doesn't hurt if the victim doesn't complain much, but falls often, and
> tries to wander about. How can they watch see this behavior in the office
> and not care?
> I know my daughter is not the only one getting slack treatment. I wish no
> one did, but I am sure there are others out there with symptoms sprialing
> out of control, to whom Mirapex or any extra dopamine agonist would be a
> godsend., Is there FDA indications about age and parkinson's medications?
> I mean to ask, is it just accepted protocol or is there REALLy an FDA
> warning not to medicate the younger sufferers. They are always trying to
> give her tranquilizers or pain pills and we refuse those. >
>

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