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Elaine, where do you live and how old is your husband? -------- God bless Mary Ann (CG Jamie 68/28 with PD, died 22/30/07) www.bentwillowfarm.org > This is very interesting information about your daughter. Thanks for > sharing. I am new to this group. My husband has had Parkinson's disease > for about ten years. He has had 4 neurologists during this time. One > took him off sinemet cold turkey in '05. My husband would freeze, not > being able to stand or roll over in bed and when he could walk, his > balance was atrocious. We went back to the neurologist who decided to > wean Dick off slower, cutting the dose each week until he was finished. > We went on vacation across the country for two weeks. When he finished > the decline in medicine, the same thing happened to him, so the > neurologist said he didn't have Parkinson's, but he didn't know what was > wrong. I said you can't give him news like this without a referral to > another expert, so he arranged to send him to the Barrow Institute in > Phoenix. That expert said he had PD and also beginning dementia. Then in > spring of this year, Dick went to a new neurologist (the other > three had left the practice by this time.) > That visit happened because we wanted to acquaint the new neurologist with > Dick's medical history. The neurologist suggested we see a different > neurologist expert in Parkinson's. She keeps a small practice, so he > could not be seen until July 31st. His problems escalated. He began to > fall and spin like a helicopter, then he could not eat without making a > big mess and looking very drunk. He fell a couple more times and then > really lost it. He was hospitalized after the EMT found his oxygen SAT > was in the low 70's. He was more and more disoriented. and came home and > became violent. It seems he had a urinary infection , not to mention that > the took him off all his meds. He was hospitalized a couple more times. > Even though I asked every day for a neurologist to see him in his present > condition, the hospital denied the request even though they had no > neurologists in the hospital. His urinary infection was treated and he had > no more violence after a two week stay in > a behavioral program. He was still very sick, however,. He went to see > the expert who agreed that he had Parkinson's and probably Lewy Body > Disease. She put him on a lot of vitamins in addition to medicine. I do > not have my husband back. I live with a nice man, my husband, who > declined so fast that he hallucinates, can't talk so one can understand > him sometimes, tends to fall, and has severe learning disability, among > other things. He has night and day sweats that I have read are dangerous, > but the doctors poo, poo! My body is going fast from lifting him several > times a day and my mind often is worse than his. It is very sad. We also > worry about losing everything we have saved to take care of us in our old > age so that we won't be dependent on our children. Everyone in the family > is hit by the side effects of whatever happened to him this past spring > and summer. He is now on three half pills of sinemet per day and lots of > other medications. Life is a roller > coaster of hope and despair. He is going to a nice psychiatrist who is > trying to balance Dick's med so that he can have a semblance of a normal > life. I'm waiting for the other shoe to drop. > Elaine > > angela hamon <[log in to unmask]> wrote: Hello All, > Margey, my daughter, had her social security exams yesterday. They > diagnosed her with stage 3 parkinsons. She had some tests for the > dementia, and an eye test for wilson's, and they reviewed the negative > blood tests for other diseases. they also went over family history of > parkinsons (my grandma). > > The Dr who took her off Sinemet has been formally reported for negligence. > She received a sample of medication, because she had a seizure during > exam, and today she is walking without assistance. I was not in the office > with her, but she tells me the Dr noted speech difficulties and said she > could expect her award letter in a few weeks . > > I had already taken her back to the referring clinic and now, with her > social security diagnosis in hand, they can rest assured that their > treatment plan was a good one. All the trouble had only started when they > referred her to a neurologist, wanting to make sure that their treatment > was right. > > > Thank you all again for your help with advice on medical records, dealing > with Drs referrals, and so forth. You guys really gave great advice! > > > _________________________________________________________________ > i'm is proud to present Cause Effect, a series about real people making a > difference. > http://im.live.com/Messenger/IM/MTV/?source=text_Cause_Effect > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > > --------------------------------- > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > Looking for last minute shopping deals? Find them fast with Yahoo! > Search. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn