very well put, i see so many people in their 60's in my support group who
are not on Levodopa and they look bad. guess they're trying to fight on
without levo. I appreciate that it is a personal choice but then again,
these people may look back and realise that a long period of their life
could have been a lot better.......why delay when u are already "old" , do
you expect to live till 115 and only start taking levodopa at the age of
100?
i'm only 40 and been on it for 2.5 yrs... i need to be functional now that
my other faculties are still relatively in tact IMHO.
btw, gwc - does the sinemet still work for you?
Regards,
----- Original Message -----
From: "gwcmpbll" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, February 02, 2008 5:03 AM
Subject: dolphime, when to start treatment
> Apparently there are a lot of DR's who still think that you should save
> carb/levo treatment for later, theory bring that there are just so many
> doses before the med is no longer effective. My opinion is that this is
> hog wash and deprives the patent of quality of life. I agree, that as the
> Parkinson's goes on, the ever lower carb/levo production of the body makes
> it much more difficult to properly time the med.'s.I think that it was
> Brian Collins of England who proved that doses as often as every fifteen
> minutes could work. this was before extended release and DA's
> I have had Parkinson's 20 years now and, as the local expert {definition:
> has been drip under pressure}, I see a stream of people who are getting
> bad doctoring and bad advice from their neurologist.
> These patients often turn out to be the kind of people who were taught to
> give automatic trust to their Dr. They need to love their Dr. I try to
> figure out who is a coward and who is brave. No use to make cowards
> afraid. Save your talk for those who want to participate in their
> treatment.
> I am so opinionated and onry that I have found it best to lirk most of the
> time. But I met a 82 year old man today who is not being treated. His
> wife loves their Dr. Since he can't drive, because of his eyes ,he goes
> where he is taken. I would like to see what 3 or 4 10/100 extended release
> tablets would so for him. My goodness, the man is 82, give him his
> med.'s.
>
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> gwc
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