maybe Sinemet does not work for these people. After my first dose I thought, this is great!! But unfortunately it never helped again, nor did Comtan, Stalevo, agonists like Mirapex, Requip, etc. DBS was the only thing that helped me, but I would certainly take PD meds if they helped. This is weird, I know, but true. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: "kbachn" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, February 02, 2008 9:34 AM Subject: Re: dolphime, when to start treatment > very well put, i see so many people in their 60's in my support group who > are not on Levodopa and they look bad. guess they're trying to fight on > without levo. I appreciate that it is a personal choice but then again, > these people may look back and realise that a long period of their life > could have been a lot better.......why delay when u are already "old" , do > you expect to live till 115 and only start taking levodopa at the age of > 100? > > i'm only 40 and been on it for 2.5 yrs... i need to be functional now that > my other faculties are still relatively in tact IMHO. > > btw, gwc - does the sinemet still work for you? > > Regards, > > > > ----- Original Message ----- > From: "gwcmpbll" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, February 02, 2008 5:03 AM > Subject: dolphime, when to start treatment > > >> Apparently there are a lot of DR's who still think that you should save >> carb/levo treatment for later, theory bring that there are just so many >> doses before the med is no longer effective. My opinion is that this is >> hog wash and deprives the patent of quality of life. I agree, that as the >> Parkinson's goes on, the ever lower carb/levo production of the body >> makes >> it much more difficult to properly time the med.'s.I think that it was >> Brian Collins of England who proved that doses as often as every fifteen >> minutes could work. this was before extended release and DA's >> I have had Parkinson's 20 years now and, as the local expert {definition: >> has been drip under pressure}, I see a stream of people who are getting >> bad doctoring and bad advice from their neurologist. >> These patients often turn out to be the kind of people who were taught to >> give automatic trust to their Dr. They need to love their Dr. I try to >> figure out who is a coward and who is brave. No use to make cowards >> afraid. Save your talk for those who want to participate in their >> treatment. >> I am so opinionated and onry that I have found it best to lirk most of >> the >> time. But I met a 82 year old man today who is not being treated. His >> wife loves their Dr. Since he can't drive, because of his eyes ,he goes >> where he is taken. I would like to see what 3 or 4 10/100 extended >> release >> tablets would so for him. My goodness, the man is 82, give him his >> med.'s. >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> gwc > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: > 269.19.19/1256 - Release Date: 2/2/2008 1:50 PM > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn