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I had botox injections in my left leg for a couple of years, then it stopped working. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: "Nina P. Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, March 04, 2008 11:22 AM Subject: Re: Camptocormia I don't have it, but when I looked it up, I found this written by my neurologist. Have you tried botox....maybe you might be one that it works for? Sorry...it's the pits! Nina "Circumstances determine our lives, but we shape our lives by what we make of our circumstances." Camptocormia Pathogenesis, classification, and response to therapy Shaheda N. Azher, MD and Joseph Jankovic, MD From Parkinson’s Disease Center and Movement Disorders Clinic, Department of Neurology, Baylor College of Medicine, Houston, TX. Address correspondence and reprint requests to Dr. Joseph Jankovic, Professor of Neurology, Director of Parkinson’s Disease Center and Movement Disorders Clinic, Department of Neurology, Baylor College of Medicine, 6550 Fannin, Suite 1801, Houston, TX 77030; e-mail: [log in to unmask] Originally considered a psychogenic disorder, camptocormia, an abnormal posture with marked flexion of thoracolumbar spine that abates in the recumbent position, is becoming an increasingly recognized feature of parkinsonian and dystonic disorders. Prior reports were limited by sample size, short follow-up, and paucity of data on response to therapy. The authors reviewed 16 patients evaluated in their PD Center and Movement Disorders Clinic diagnosed with camptocormia. In addition to detailed neurologic assessment all patients were videotaped. The mean age was 64.9 ± 17.4 years, mean age at onset of neurologic symptoms was 51.5 ± 19.9 years, duration from onset of neurologic symptoms to development of camptocormia was 6.7 ± 7.6 years, and the mean duration of camptocormia was 4.5 ± 3.9 years. Of the 16 patients, 11 (68.8%) had Parkinson disease (PD); others had dystonia (n = 4) and Tourette syndrome (n = 1). Twelve patients received levodopa, with minimal or no improvement in the camptocormia. Nine patients received botulinum toxin type A injections into the rectus abdominus, with notable improvement in their camptocormia in four. One patient underwent bilateral subthalamic nucleus deep brain stimulation for PD, but there was no improvement in camptocormia. Based on this series and a thorough review of the literature of camptocormia, head drop, and bent spine syndrome, the authors propose etiologic classification of camptocormia and conclude that this heterogeneous disorder has multiple etiologies and variable response to systemic and local therapies. Additional material related to this article can be found on the Neurology Web site. Go to www.neurology.org and scroll down the Table of Contents for the August 9 issue to find the title link for this article. Disclosure: The authors report no conflicts of interest. Received November 20, 2004. Accepted in final form April 18, 2005. On Mar 3, 2008, at 5:26 AM, Murray Kastner wrote: > Firstly, let me apologize. I have been a peripatetic reader here for a > few years but I have been mute for quite a while as other matters > (like making my daily bread!) interfered, and my PD seemed to be > quiet. No more. So I am looking for more info on camptocormia, which > has debilitated me far worse than any of my other symptoms. > > Anyone else stooped over to the extent of not being able to walk more > than a few city blocks and only with a walker? > > TIA for any help profferred. I feel like I have just been imprisoned. > > Murray Kastner > Montreal, Canada > [log in to unmask] > (514)296-8808 > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.4/1310 - Release Date: 3/4/2008 8:35 AM ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn