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Jean My Mom had TN at least 20 years and yes you do get desperate........it is known as the "suicide" disease. Unfortunately, nothing much can be done, except brain surgery which is risky and not a pleasant thought. I don't really know what Dr. Waltlz's non-invasive treatment was/is because my Mom died between my two DBSs. She had had a stroke (due to high BP) and even forgot she had seen Waltz. If I knew how to raise awareness about disease in general I would be doing it. I try to ruffle feathers when and wherever I can though. It just shows how much research needs to be done in the area of neurological diseases. The scope of human suffering is just staggering and I do understand and feel your pain. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: [log in to unmask] To: [log in to unmask] Sent: Thursday, April 10, 2008 9:20 AM Subject: Re: can you please help me ask a ? on the LISTSERV, i keep getting rejected I thank you for replyig, dsorry it toook awhile to reply. ia m so sorry for your MoM, how long did she have to deal wither problem and PAIN? Now if you don't mind.can we talk about h ow i can (or if you can) so all of the country can recommend Trigeminal Neuralgia, she needs HELPsoon she cant stand thse [pain anyjmore) and cant get the proper treatment s around town,. ThNK A fI AGAIN FOR YOUR IME TAKE CARE FELLOW PD'er ------------------------------------------------------------------------------ Planning your summer road trip? Check out AOL Travel Guides. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn