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Jean wants to raise public awareness about this terrible affliction so I am posting our conversations. FYI I found info on Waltz and lost it again. If I don't hear from people soon I don't have info at my fingertips. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: [log in to unmask] To: [log in to unmask] Sent: Thursday, April 10, 2008 9:33 AM Subject: need to place ad onto the listserv PLEASE-asap,thanks Jean My mother suffered from trigeminal neuralgia or tic doloreaux. it is a horrible malady. Right before she died in August 2003 she saw Dr. Thomas Waltz at Scripps Clinic in La Jolla California. The medication, Tegretol, only did so much and there were side effects. Often it failed to work. Waltlz did my 2 DBSs but also was known for treating TN. In fact, somewhere I have a page on him and tic doloreaux, but I'm looking for it, I can't find it. He was 73 years old when he did my surgery - don't know if he is still practicing or not. Email me back if you can't contact Scripps, I know the info is here somewhere. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: [log in to unmask] To: [log in to unmask] Sent: Sunday, March 30, 2008 1:27 AM Subject: can you please help me ask a ? on the LISTSERV, i keep getting rejected thank you, i see your nice writing on the lISTSERV quite often i would appreciate all your help, thx again JeanZ frin Buffalo Hi My Name is Jean from BUFFALO i am a fellow pwp and my friend whom is also a pwp has a friend who is having a tuff time battling "trigeminal neuralgia" it claims to be one of THEY MOST PAINFUL brain disorders. They say its like a "stabbing" or "shocklike" facial PAIN ! Neuralgia is recognized as one of the MOST Excruciating forms of pain known.Its quality is "sharp" "stabbingg" "piercing" "burning",""like lightning" or like an "electric shock". Now this is the part i'm concerned about,they say apprx 80& OF THE PATIENTS are free of pain with medication alone...hmm , do we have the right neurologist,?? thats' where i need alittle help from MY Friends, Does anyone know of a good NEURO WHO CAN HELP US?? THE PATIENT HAS BEEN THRU THE GAMMA KNIFE AND I believe it is VMA? We would be willing to go to the east coast or west coast, (ie , CA & or MASSACHUSETTS) pt is reaching out for H E L P . Thank you All for your attention to this matter. -------------------------------------------------------------------------------- Planning your summer road trip? Check out AOL Travel Guides. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn