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Yes. I'm a retired teacher and also someone who loves to talk plus it just makes communication so difficult. Doesn't mean this would happen to you. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: "Louis Steinberg" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, April 17, 2008 3:19 AM Subject: Re: DBS info? > Thank you for your reply. > > Do I understand correctly that the DBS made speaking harder? That would > be a big problem - I am a college professor and make my living by > lecturing. > > > On Apr 14, 2008, at 1:37 PM, rayilynlee wrote: > >> Louis >> >> I had 2 DBSs in 2003 (one was a redo) and they stopped my tremors and >> seem to have arrested my other symptopms where they were at that time, >> with the exception of making speaking extremly difficult. >> >> Like witih most PD treatments there are mixed results, but I do believe >> that you can almost count on tremor being controlled (DBS is also used >> for essential tremor) if that is a major symptom and concern. If you >> don't have tremor you might not want to consider it. >> >> I don't take ANY PD meds, but Sinemet only worked ONCE anyway. Many >> people report hey can reduce there meds. >> >> No, you can't have an MRI or CPR. I have not travelled since 1999, but >> I would guess airline security could be a problem because it could turn >> your neurotransmitters OFF. With my added speaking difficulty, I would >> not look forward to explaining my condition to airline security >> personnel. >> >> The major risk seems to be infection, although stroke is a possibility >> and even death, but I think the mortality rate is very low. I beat the >> odds. I did not get my life back, but life would have been unbearable >> without it. >> >> Ray >> Rayilyn Brown >> Board Member AZNPF >> Arizona Chapter National Parkinson's Foundation >> [log in to unmask] >> ----- Original Message ----- From: "Louis Steinberg" >> <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Sunday, April 13, 2008 8:05 AM >> Subject: DBS info? >> >> >>> Hi all. I am beginning to consider DBS surgery for my PD, and I am >>> wondering if anyone can point me to information on the plusses and >>> minuses of this treatment. I am particularly interested in >>> - probability of bad effects (e.g. stroke) >>> - what symptoms are and are not improved >>> - restrictions in what you can do because of the wiring (eg can you >>> take an airplane flight? get an mri? ..) >>> >>> Thanks for any pointers / personal experiences. >>> >>> --------------------------------------------------------------------- >>> - >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn