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Sandra Welcome to our group. I am so sorry to hear about the stroke you suffered due to DBS. I had 2 DBSs in 2003 (one was a do over) and it controls my tremors, no meds, but my symptoms have remained pretty much the same since then (except for voice). Am just recovering from a loss of balance fall on my tail bone - no bones broken, but very painful. I love Sydney. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: "MyFirstname Mylastname" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, May 04, 2008 1:58 AM Subject: New Member > - > > Hello, I am a new member from Sydney Australia. I only found out about the > site from the book "When Parkinson's Strikes Early". > > I was diagnosed in 2002 at age 35. My husband and I have 2 children. In > 2006 I had deep brain stimulation surgery but it was unsuccessful and I > suffered a stroke on the left side of my body. > > I have changed neurologists again and have finally found someone who wants > to reduce my medication! I actually feel better with fewer side effects > and sleep better. > He told me about "dopamine dysregulation syndrome" which I had not heard > of before. > > I have been undergoing rehab and started with a personal trainer at the > gym last February to strengthen the muscles on my left side of the body. I > think the weight training has helped and the reduction in medication has > almost eliminated my dyskinesias. I joined the gym after my diagnosis and > attend Pilates classes regularly which help me to maintain my muscle > flexibility and reduce stiffness (lots of stretches and can be adapted for > different fitness levels). > > I still have limited use of my left hand but I can walk independently and > can drive with a spinner-knob. > > I have gone through severe depression and a lot of personal trauma but I > have been blessed with a loving family a great Parkinson's support group, > supportive church community , some very supportive health professionals > and a great driving instructor who have got me through the really dark > times. > > So remember, never lose hope, there are lots of wonderful people out there > who will help you - you just have to let them. > > I am always surprised at the kindness of complete strangers. There is a > lot of travelling and a lot of things to be done so I want to do as much > as I can while I can. For those young-onset people who don't attend > support group meetings - you should give it a go. They are really great > and you can provide support to someone else too. > > > Thanks for letting me join your community. > > Sandra Way > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn