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Ken, generally it is when you have been responsive to PD meds, but they are no longer working. In my case meds only worked once, but I had a PET scan from UCLA saying my brain was "consistent with PD" or something like that. Also, I was 67 when my DBSs were done and I heard they prefer not to do them after age 70, but it depends on the person. Tremor was my worst symptom and DBS really helped that. I still don't take any PD meds. Ray Rayilyn Brown Board Member AZNPF Arizona Chapter National Parkinson's Foundation [log in to unmask] ----- Original Message ----- From: "kbachn" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, May 04, 2008 8:27 AM Subject: Re: New Member > Hi Sandra, > > i was diagnosed too at an early age (36), just wondering how you decided > to have a DBS only 4 yrs after dx. > what conditions does one have to be in before a DBS is recommended? > > Regards, Ken > > ----- Original Message ----- > From: "MyFirstname Mylastname" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, May 04, 2008 4:58 AM > Subject: New Member > > >> - >> >> Hello, I am a new member from Sydney Australia. I only found out about >> the site from the book "When Parkinson's Strikes Early". >> >> I was diagnosed in 2002 at age 35. My husband and I have 2 children. In >> 2006 I had deep brain stimulation surgery but it was unsuccessful and I >> suffered a stroke on the left side of my body. >> >> I have changed neurologists again and have finally found someone who >> wants to reduce my medication! I actually feel better with fewer side >> effects and sleep better. >> He told me about "dopamine dysregulation syndrome" which I had not heard >> of before. >> >> I have been undergoing rehab and started with a personal trainer at the >> gym last February to strengthen the muscles on my left side of the body. >> I think the weight training has helped and the reduction in medication >> has almost eliminated my dyskinesias. I joined the gym after my diagnosis >> and attend Pilates classes regularly which help me to maintain my muscle >> flexibility and reduce stiffness (lots of stretches and can be adapted >> for different fitness levels). >> >> I still have limited use of my left hand but I can walk independently and >> can drive with a spinner-knob. >> >> I have gone through severe depression and a lot of personal trauma but I >> have been blessed with a loving family a great Parkinson's support group, >> supportive church community , some very supportive health professionals >> and a great driving instructor who have got me through the really dark >> times. >> >> So remember, never lose hope, there are lots of wonderful people out >> there who will help you - you just have to let them. >> >> I am always surprised at the kindness of complete strangers. There is a >> lot of travelling and a lot of things to be done so I want to do as much >> as I can while I can. For those young-onset people who don't attend >> support group meetings - you should give it a go. They are really great >> and you can provide support to someone else too. >> >> >> Thanks for letting me join your community. >> >> Sandra Way >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn