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No matter how much has been researched and written on L-Dopa and other meds, 
no matter what our individual experiences are, the bottom line (again) is that 
every PD patient is unique and responds differently to meds and other 
treatments.  This is what makes this malady so frustrating.  I have been 
astounded to hear neurologists ask Laureen, "What do you want to try next?"  
One neurologist even wrote her half a dozen prescriptions, so that she could 
decide for herself what to experiment with!

As we've already discussed, neurologists take their own approaches to PD.  
Some have a lot of experience with PD, others have little more than a clue.  
Some unbelievably overmedicate their patients.  Some take a more cautious 
approach.  Some say it's better to start medication early, others later, etc.  
As a scholar, I have read the literature on medications over and over and over 
and over, only to conclude that very little exists (to date, and to my 
knowledge) that applies to everyone in the PD community.  One thing we can say 
for sure is that PD medications have side effects, whether it be 
hallucinations, diskinesia, gastric distress, or whatever.

What makes a list like this one so valuable is that fact that it enables PDers 
to compare their experiences and share information that hopefully will  apply 
to others on the list.  One researcher commented to me that everyone on this 
PD list is lost, that everyone is just grabbing at straws!  (That researcher 
by the way, does not have the answers, either.)  As insulting as that comment 
sounds, it seems to me that the world of PD is, indeed, an easy one in which 
to get lost, because everyone who's trusted to know what he or she is doing 
gives different directions.  At least here on the List, people have found 
*something* important; they've found each other.  I don't need to go into how 
helpful that is.   Scott

Scott E. Antes
Department of Anthropology
Northern Arizona University
Flagstaff, AZ 86011-5200

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