HI:
I agree with Antes that every individual is different, with reference to
the response to Sinemet or any other drug for that matter. Early on I
decidedd to stay away from medications as long as I can. Come to think of
it, my decision in 1999 was the right one. However, I was seeking other
sources for some relief.
Extensive reading helped me to decide what can I do to help myself fro
my predicamnt. On top of my problems, my movement disorder spoecialist
refused to see me becuase I sought a second opinion.
I decided to give a try at Ayurvedic medicine. I went and interviewed
Dr. Paneri in Ahmedabad, I tried his medications for two years. At he same
time, I was actively pursuing my own knowledge about anti-oxidants (AOs). I
added 1/2 a pill of celebrex (Since we know that this will inhibit n enzyme
that will aid in PD development) to my AOs, which I think was a mistake. In
2005 or so, I had a block in my coranary artery and I went through two
angioplasties in one year. My cariologist told me that No Celebrex any more.
As a result, I stopped Dr. Paneri's medications since at that time I did not
kjnow what caused my heart problems.
Now I am taking the following medications (Mostly nutritional
supplements) which are helping me and I am still functional, even though I
am 74.
Swanson's condition specific brain esentials (This is esentially some B
vitamins and Gotu kola - an ayurvedic herb.) This is the only PD medicine I
was taking everyday 1 cps in the morning and 1 caps, in the evening for some
time.
Others are simply nutritional upoplements such as turmeric (1 x 500 mg
capsule 3 timees day)
Aspirin 81 mg pill 1 a day (this is for my heart trouble, But I am
sure this also inhibits the same enzyme as celebrex does, which I aM
confident is helping me in my fight against PD.
Synthroid 50 mcg
Co E Q10 200 mg caps 3x a day (This is known to retard PD and also is
required for heart function by providing energy, since I am taking Lipitor
for my heart trouble. I am lso taking motoprolal and attacand for my heart
trouble).
N-acetyl cysteine 600 mg one caps in the morning
Multivitamin pill 1 in the morning
Goji extract caps. 1 in the morning and 1 in the evening
Blue berry extract caps 3 in the evening
Pomogranate extract 1 caps. in the evening
Grape seed extract 1 in the morning
Since Sinamet is supposed to protect L-dopa producing cells, I added 2 pills
per day: 1 in the morning and 1/2 pill in the evening and 1/2 pill in the
night,
I am sure that Sinamet and the condition specific Brain essentials are
keeing me going the whole day. My PD doctor tells me that I should take more
sinamet pills. But I am content with what I am taing right now. I don't want
to take more sinamet, if i can help it.
The story's take home lesson is that sinamet and my Ayurvedic Brain
Essentials are together effective in helping through out the day.
I am on the second year of using sinamet. So far, I do not have
dyskenasia.
This is for your info.
Dr. R. Rajaraman
******************************************************************************
----- Original Message -----
From: "Scott E. Antes" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, June 27, 2008 11:43 AM
Subject: Re: Sinemet CR & Dyskinesia ????
> No matter how much has been researched and written on L-Dopa and other
> meds,
> no matter what our individual experiences are, the bottom line (again) is
> that
> every PD patient is unique and responds differently to meds and other
> treatments. This is what makes this malady so frustrating. I have been
> astounded to hear neurologists ask Laureen, "What do you want to try
> next?"
> One neurologist even wrote her half a dozen prescriptions, so that she
> could
> decide for herself what to experiment with!
>
> As we've already discussed, neurologists take their own approaches to PD.
> Some have a lot of experience with PD, others have little more than a
> clue.
> Some unbelievably overmedicate their patients. Some take a more cautious
> approach. Some say it's better to start medication early, others later,
> etc.
> As a scholar, I have read the literature on medications over and over and
> over
> and over, only to conclude that very little exists (to date, and to my
> knowledge) that applies to everyone in the PD community. One thing we can
> say
> for sure is that PD medications have side effects, whether it be
> hallucinations, diskinesia, gastric distress, or whatever.
>
> What makes a list like this one so valuable is that fact that it enables
> PDers
> to compare their experiences and share information that hopefully will
> apply
> to others on the list. One researcher commented to me that everyone on
> this
> PD list is lost, that everyone is just grabbing at straws! (That
> researcher
> by the way, does not have the answers, either.) As insulting as that
> comment
> sounds, it seems to me that the world of PD is, indeed, an easy one in
> which
> to get lost, because everyone who's trusted to know what he or she is
> doing
> gives different directions. At least here on the List, people have found
> *something* important; they've found each other. I don't need to go into
> how
> helpful that is. Scott
>
> Scott E. Antes
> Department of Anthropology
> Northern Arizona University
> Flagstaff, AZ 86011-5200
>
> ----------------------------------------------------------------------
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