 |
 |
Hi Henry, There are lots of sources of information on the Internet where you can learn about Parkinson's. There are lots of books too that are helpful in telling you about the illness. In fact there is no dearth of information out there. It is a good idea to inform yourself about the disease, because certainly in India, where I live, the doctors are not too good about telling one enough about it. Who knows what anyone's future holds? And so far as I can tell, for each individual PD progresses differently. However, there is something you can do right now....live life to the fullest and do things which you have always wanted to do so that you have no regrets later on. Don't allow yourself to brood, though it is hard to come to terms with the diagnosis at first. Accept some limitations that it might bring and carry on regardless. We have had a wonderful six years since my husband was first diagnosed doing things which we may never have done otherwise. Only in the last year or so has he had some problems which are challenging. So go ahead and be positive. All the best, Moneesha 2008/6/30 Henry Bailey <[log in to unmask]>: > I know we all react differently and no one can diagnose over the internet > but I don't have much in the way of information sources. > > i was diagnosed 2 weeks ago- the doctor took almost 5 minutes to tell me I > had Parkinsons - give me a script for ropinerole and tell me to come back in > 2 months.He mentioned I might want to check the internet. Being realistic- I > was in shock and I may not have listened to much else. > > I called Park Foundation - they gave me names of 2 experts( movement > disorder specilists) in New Mexico (I'm south of Albuquerque) One dr gave > me an appt in 3 months - the other Dr is not taking new patients. > > So, I've read info from Parkinsons Foundation and subscribed to this list. > > 2 weeks prior to diagnosis, I started Reglan for gastro paresis. Reglan is > great UNLESS you have Park. So, during the 2 weeks of Reglan, I went from > 'functional' (going to work, etc) to barely able to dress myself. Its been > 2+ weeks since I have stopped the Reglan - but I have not completely > recovered from that. > QUESTION - anyone else have Reglan problems ?? and did stopping the Reglan > get you back to normal? > > I was told the only thing I could now do for gastro paresis was to eat > smaller meals - more often. I have daily pain. I have greatly 'healthied' up > my diet - lost 20 lbs. > > I am slow and weak - arms are the worst. I'm off work now. The 2+ weeks of > ropinerole improved a bit but its not a huge improvement- can't yet think > about returning to work. > > QUESTION - does heat ,exercise, cold , etc seem to make things better?? > or worse? > > I have no idea how much if any I can expect to restore some of my > functions. Yesterday, I did ride my horse for the first time in 6 weeks- > that was a huge gift to my spirit. > > Any comments or encouragements are appreciated.. > > Henry > in sunny Los Lunas > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn