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I forgot to add, exercise helps a great deal.
My husband too experienced pain and the digestion problems, but they settled
down after a bit.
Moneesha



2008/6/30 Henry Bailey <[log in to unmask]>:

> I know we all react differently and no one can diagnose over the internet
> but I don't have much in the way of information sources.
>
> i was diagnosed 2 weeks ago- the doctor took almost 5 minutes to tell me I
> had Parkinsons - give me a script for ropinerole and tell me to come back in
> 2 months.He mentioned I might want to check the internet. Being realistic- I
> was in shock and I may not have listened to much else.
>
> I called Park Foundation - they gave me names of 2 experts( movement
> disorder specilists)  in New Mexico (I'm south of Albuquerque) One dr gave
> me an appt in 3 months - the other Dr is not taking new patients.
>
> So, I've read info from Parkinsons Foundation and subscribed to this list.
>
> 2 weeks prior to diagnosis,  I started Reglan for gastro paresis. Reglan is
> great UNLESS you have Park. So, during the 2 weeks of Reglan, I went from
> 'functional' (going to work, etc) to barely able to dress myself. Its been
> 2+ weeks since I have stopped the Reglan - but I have not completely
> recovered from that.
> QUESTION - anyone else have Reglan problems ?? and did stopping the Reglan
> get  you back to  normal?
>
> I was told the only thing I could now do for gastro paresis was to eat
> smaller meals - more often. I have daily pain. I have greatly 'healthied' up
> my diet - lost 20 lbs.
>
> I am slow and weak - arms are the worst. I'm off work now. The 2+ weeks of
> ropinerole improved a bit but its not a huge improvement-  can't yet think
> about returning to work.
>
> QUESTION - does heat ,exercise, cold , etc   seem to make things better??
> or worse?
>
> I have no idea how much if any I can expect to restore some of  my
> functions. Yesterday, I did ride my horse for the first time in 6 weeks-
> that was a huge gift to my spirit.
>
> Any comments or encouragements are appreciated..
>
> Henry
> in sunny Los Lunas
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