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Dear Henry, Hello! Everyone says get as much exercise as you can. In England you can get a patch for the drugs often prescribed. This patch was taken off the market by the FDA. It makes a huge improvement, if you can get it. The Northwest Parkinsons Foundation sends an email newsletter that is very good. Azilect seems to work well for many, but everyone is different. Reglan is a disaster, I agree. It has sedative effects. All the doctors are just experimenting. No one has the answer. Keep your chin up! Pam On Jun 30, 2008, at 11:12 AM, Henry Bailey wrote: > I know we all react differently and no one can diagnose over the > internet but I don't have much in the way of information sources. > > i was diagnosed 2 weeks ago- the doctor took almost 5 minutes to > tell me I had Parkinsons - give me a script for ropinerole and tell > me to come back in 2 months.He mentioned I might want to check the > internet. Being realistic- I was in shock and I may not have > listened to much else. > > I called Park Foundation - they gave me names of 2 experts( movement > disorder specilists) in New Mexico (I'm south of Albuquerque) One > dr gave me an appt in 3 months - the other Dr is not taking new > patients. > > So, I've read info from Parkinsons Foundation and subscribed to this > list. > > 2 weeks prior to diagnosis, I started Reglan for gastro paresis. > Reglan is great UNLESS you have Park. So, during the 2 weeks of > Reglan, I went from 'functional' (going to work, etc) to barely able > to dress myself. Its been 2+ weeks since I have stopped the Reglan - > but I have not completely recovered from that. > QUESTION - anyone else have Reglan problems ?? and did stopping the > Reglan get you back to normal? > > I was told the only thing I could now do for gastro paresis was to > eat smaller meals - more often. I have daily pain. I have greatly > 'healthied' up my diet - lost 20 lbs. > > I am slow and weak - arms are the worst. I'm off work now. The 2+ > weeks of ropinerole improved a bit but its not a huge improvement- > can't yet think about returning to work. > > QUESTION - does heat ,exercise, cold , etc seem to make things > better?? or worse? > > I have no idea how much if any I can expect to restore some of my > functions. Yesterday, I did ride my horse for the first time in 6 > weeks- that was a huge gift to my spirit. > > Any comments or encouragements are appreciated.. > > Henry > in sunny Los Lunas > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn