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There are some good books you can read for information and I found these on Amazon so they are still on print: "When Parkinson's strikes Early" by Barbara Blake-Kebbs and Linda Herman "Parkinson's Your Questions Answered" by Thomas Foltynie , Simon Lewis and Roger A. Barker If you have a local Parkinson's support group it's a good idea to join up. If you're not happy with your doctor the other PWP's might have more understanding neurologists who specialise in movement disorder. Here in Australia, we tend to find that the doctors attached to teaching hospitals are more up to date with treatment options. The Parkinson's support groups tend to run information sessions etc on daily living issues. There may be other health services you can access - speech pathologists can help with speech and swallowing problems, physiotherapists can give you exercises for walking and hand movements, balance groups may help too. I'm the youngest member of my local support group but I still find it useful to be with people with Parkinson's. Support groups can be useful for your loved ones to attend as well. Exercise really does help a lot. Best wishes and remember you are not alone. Regards Sandra Way On 01/07/2008, at 6:34 PM, Moneesha Sharma wrote: > I forgot to add, exercise helps a great deal. > My husband too experienced pain and the digestion problems, but they > settled > down after a bit. > Moneesha > > > > 2008/6/30 Henry Bailey <[log in to unmask]>: > >> I know we all react differently and no one can diagnose over the >> internet >> but I don't have much in the way of information sources. >> >> i was diagnosed 2 weeks ago- the doctor took almost 5 minutes to >> tell me I >> had Parkinsons - give me a script for ropinerole and tell me to >> come back in >> 2 months.He mentioned I might want to check the internet. Being >> realistic- I >> was in shock and I may not have listened to much else. >> >> I called Park Foundation - they gave me names of 2 experts( movement >> disorder specilists) in New Mexico (I'm south of Albuquerque) One >> dr gave >> me an appt in 3 months - the other Dr is not taking new patients. >> >> So, I've read info from Parkinsons Foundation and subscribed to >> this list. >> >> 2 weeks prior to diagnosis, I started Reglan for gastro paresis. >> Reglan is >> great UNLESS you have Park. So, during the 2 weeks of Reglan, I >> went from >> 'functional' (going to work, etc) to barely able to dress myself. >> Its been >> 2+ weeks since I have stopped the Reglan - but I have not completely >> recovered from that. >> QUESTION - anyone else have Reglan problems ?? and did stopping the >> Reglan >> get you back to normal? >> >> I was told the only thing I could now do for gastro paresis was to >> eat >> smaller meals - more often. I have daily pain. I have greatly >> 'healthied' up >> my diet - lost 20 lbs. >> >> I am slow and weak - arms are the worst. I'm off work now. The 2+ >> weeks of >> ropinerole improved a bit but its not a huge improvement- can't >> yet think >> about returning to work. >> >> QUESTION - does heat ,exercise, cold , etc seem to make things >> better?? >> or worse? >> >> I have no idea how much if any I can expect to restore some of my >> functions. Yesterday, I did ride my horse for the first time in 6 >> weeks- >> that was a huge gift to my spirit. >> >> Any comments or encouragements are appreciated.. >> >> Henry >> in sunny Los Lunas >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn