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When I first gained internet access and found the PARKINSN list at the University of Toronto, I was welcomed to the list by Camilla and found a community of Parkies and Caregivers interacting. Those early posts included many nutritional notes by Kathryn Holden which were helpful to us. I remember other parkies who reached out to us in our early searching for online information about PD and its treatment. It also put us in touch with Dr. Abe Lieberman's daily online forum. It was during this period we began to read online about pallidotomy as a surgical intervention. Nancy's neurologist at the time had just told her that there was nothing more that could be done for her situation in 1994. Somehow she got the National Parkinson's Foundation's phone number and called almost in tears asking to talk with someone who could give her some hope. She was referred to Dr. Peter LeWitt at the NPF Center for Excellence in Michigan. She made that call and was given an appointment within two weeks. He led her to Dr. Fred Junn who did the surgical intervention for her in August 1996. Those appointments involved 1200-mile round trips and were made without hesitation. Her successful pallidotomy was celebrated by the Henry Ford Hospital's Will Robinson Neurosurgery Fund's designation as an Honored Patient at the 5th Annual Fundraiser at the Palace in Auburn Hills, MI, October 1997. We shall be forever grateful for the support of NPF, the Parkinsn list and all those who have been such a help to us in this journey. As I recall it was about that time the CARE list was created to provide for caregivers who had different needs. We dropped off the Parkinsn list when she retired in 2000. I am so pleased to be a member now of both lists which provide so much support and information. Wayne 71 CG for Nancy 74/22/52 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn