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Amanda,

I think it is wonderful that you have been asked to write about how PD has
affected your life - I really feel that there is insufficient understanding
of how this illness takes over your life.

The fact that you don't do whining is in fact a very good thing because
whining tends to put people off.  It is perfectly possible to write about
how PD has affected you without whining or talking about emotions.   As you
say, it has impacted every part of your life and that is what you should put
down - the daily physical challenges, big and small; the impact on your
social relationships; the non-motor symptoms; the changes that you may have
had to make in your lifestyle; the various deprivations that you have had to
come to terms with etc etc.  I would say that you start with how it started
for you and take it from there.

Good luck!

Moneesha



2008/8/18 <[log in to unmask]>

> I was recently asked (by the London Parkinson's Disease Society) to
> encourage
> politicians in supporting stem-cell research by writing how PD has affected
> my
> life.
> The trouble is, I don't know where to start, as
> a) I'm not used to talking about emotions;
> b) I don't do whining;
> c) can't think of any part of my life the evil little stinker didn't affect
> -
> though not always for the worse.
>
> Any advice ?
> Amanda Phillips
>
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