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Amanda, We have had the not-very-pleasant experience of being dropped by some 'friends'. At first I was really upset about it but I eventually realised that these 'friends' do not know how to handle Prem's Parkinson's and the changes they see in Prem. So they handle it by not seeing us, by not phoning, by not speaking much to him at social gatherings etc. He is still the same person, but they do not take the trouble to get past the externals. On the other hand, not everyone is like that and there have been several who have reacted with compassion and friendliness. Perhaps this aspect of social relationships should also be part of your note on how PD has affected you. Do post a copy of what you write so that we can all read it. All the best, Moneesha 2008/8/20 <[log in to unmask]> > Thanks Moneesha. > > At the moment, it's the way some people react that gets to me - I'm not a > problem, a disease or handicap, - I'm still ME ! > > > Quoting Moneesha Sharma <[log in to unmask]>: > > > Amanda, > > > > I think it is wonderful that you have been asked to write about how PD > has > > affected your life - I really feel that there is insufficient > understanding > > of how this illness takes over your life. > > > > The fact that you don't do whining is in fact a very good thing because > > whining tends to put people off. It is perfectly possible to write about > > how PD has affected you without whining or talking about emotions. As > you > > say, it has impacted every part of your life and that is what you should > put > > down - the daily physical challenges, big and small; the impact on your > > social relationships; the non-motor symptoms; the changes that you may > have > > had to make in your lifestyle; the various deprivations that you have had > to > > come to terms with etc etc. I would say that you start with how it > started > > for you and take it from there. > > > > Good luck! > > > > Moneesha > > > > > > > > 2008/8/18 <[log in to unmask]> > > > > > I was recently asked (by the London Parkinson's Disease Society) to > > > encourage > > > politicians in supporting stem-cell research by writing how PD has > > affected > > > my > > > life. > > > The trouble is, I don't know where to start, as > > > a) I'm not used to talking about emotions; > > > b) I don't do whining; > > > c) can't think of any part of my life the evil little stinker didn't > > affect > > > - > > > though not always for the worse. > > > > > > Any advice ? > > > Amanda Phillips > > > > > > ---------------------------------------------- > > > This mail sent through http://www.ukonline.net > > > > > > ---------------------------------------------------------------------- > > > To sign-off Parkinsn send a message to: mailto: > > > [log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > > > > ---------------------------------------------- > This mail sent through http://www.ukonline.net > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn