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Thanks Moneesha.

At the moment, it's the way some people react that gets to me - I'm not a
problem, a disease or handicap, - I'm still ME !  


Quoting Moneesha Sharma <[log in to unmask]>:

> Amanda,
> 
> I think it is wonderful that you have been asked to write about how PD has
> affected your life - I really feel that there is insufficient understanding
> of how this illness takes over your life.
> 
> The fact that you don't do whining is in fact a very good thing because
> whining tends to put people off.  It is perfectly possible to write about
> how PD has affected you without whining or talking about emotions.   As you
> say, it has impacted every part of your life and that is what you should put
> down - the daily physical challenges, big and small; the impact on your
> social relationships; the non-motor symptoms; the changes that you may have
> had to make in your lifestyle; the various deprivations that you have had to
> come to terms with etc etc.  I would say that you start with how it started
> for you and take it from there.
> 
> Good luck!
> 
> Moneesha
> 
> 
> 
> 2008/8/18 <[log in to unmask]>
> 
> > I was recently asked (by the London Parkinson's Disease Society) to
> > encourage
> > politicians in supporting stem-cell research by writing how PD has
> affected
> > my
> > life.
> > The trouble is, I don't know where to start, as
> > a) I'm not used to talking about emotions;
> > b) I don't do whining;
> > c) can't think of any part of my life the evil little stinker didn't
> affect
> > -
> > though not always for the worse.
> >
> > Any advice ?
> > Amanda Phillips
> >
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