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Bill and fellow PWP: I did not write the article on "Shadow People" nor have I ever had a hallucination, as I don't take PD meds. Someone named "Carl" did, but it is not easy to see. I do understand the importance of citing sources so I always try to do so when I prepare an article for posting on PIEN. It involves copying an article from the web while including all important data like the source and leaving out pictures, graphics, etc. 90 % of the time it works well, especially if the article comes from a newspaper or magazine,but sometimes an article slips through (bloggers are especially bad) as due to PD I am not as good a wordprocessor as I used to be. Since the List is a diverse group I do try for a variety of articles: PD and general research, politics affecting research, PD action alerts, personal stories and experience. I hadn't even read all of "The Neglected Side of PD" which many people seemed to think I wrote. I understand that hallucinations are a problem for many PWP and that is why I chose that article to post, but have not experienced them myself. I don't join conversations about PD drugs as I don't take them. Keep in mind that 95% of the time I am "reporting" and the opinions expressed may not necesarily reflect my own. In the future I will try to do a better job of citing sources. I "plain text" and copy the articles so you don't have to go to a URL to open them. The List will not accept articles over 500 lines or with lots of stuff. By writing a Subject line I try to give you an idea as to what it's about. If the source is omitted you can probably find it by searching using the title or subject line. About 3 years ago Diane Wyshak of Massachusetts approached me with the request to post articles she finds daily and that is what I try to do. We have been partners ever since. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] ----- Original Message ----- From: "William P. Taggart" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, August 26, 2008 7:25 AM Subject: Re: Shadow People > Rayilyn ~ > > Thank you for sharing this with us. I am taking Seroquel for similar > reasons, although you sound much further along than am I. It's good to > know I'm not unique in this matter. > > I appreciate all the effort you invest in making this list interesting > and useful. THANK YOU also for that. > > ABT. > > Bill Taggart > > ~~~~~~~~~~~~~~~~~~~~~ > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of Schaaf Angus / > Meadow Creek Ranch > Sent: Monday, August 25, 2008 6:01 PM > To: [log in to unmask] > Subject: Re: Shadow People > > Gee Ray, > Sounds like loads of fun. Just dont invite me to that party. > I'll just keep having fun in my slow motion ways. > Take care and tell Bernie to leave you alone and dont invite others > over. > Rob > > ----- Original Message ----- > From: "rayilynlee" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, August 22, 2008 1:04 PM > Subject: Shadow People > > >> I See Shadow People >> Filed under: Parkinson's disease, Sinemet, hallucinations, humor, >> medications, paranormal, shadow people, vision - Carl @ 9:01 pm >> Tags: antiparkinson, hallucinations, medications, paranormal, >> Parkinson's disease, shadow people, vision problems >> #26 - Haunted, originally uploaded by John Martz. >> One of the most peculiar things about living with Parkinson's disease >> has > to >> be the hallucinations. >> Not everybody has them. However what I can tell from the experiences >> of others with PD, hallucinations are the rule and not the exception. >> In Parkinson's disease, hallucinations are almost always of the visual > type. >> Though usually a side effect of taking antiparkinson medications, it's > often >> a secondary symptom of the disease itself. >> In my case it seems that I am never alone. I tend to see very odd >> shadowy figures darting around me, often looking as if they are trying > >> to take > peeks >> at me and then quickly hide themselves away lest I see them > face-to-face. > In >> other words, it's like dealing with my family when I make a visit to > Texas. >> According to a publication by the National Parkinson's Foundation, >> hallucinations experienced by those with Parkinson's disease "may be >> seen darting out of the corner of the eye, or crawling bugs will be >> seen in pattered wall coverings or floor tiles, seeing small people, >> children and animals." >> Welcome to my world. I generally see the phenomenon known as shadow > people. >> For you ghost hunters out there, you know what I am talking about. Now > >> I believe these are just hallucinations, but a good friend of my who >> investigates the paranormal has offered an alternative explanation and > >> way of dealing with these things. >> You see, there's very little I can do about the shadow people. They >> peak around corners and furniture. They climb up the walls. They >> sometimes rush up from behind me. I see them in the corner of my eye, >> but when I turn to them they disappear. Once in a while they will dare > >> to prance out right in front of me, but this is very rare. >> I generally ignore these shadow people. In my mind they are >> hallucinations caused by either my antiparkinson drugs, my disease, or > both. >> My friend who is interested in the paranormal suggests that my >> medication and/or the disease make me open to see what I otherwise >> would not be able > to >> see. He also suggests trying to have conversations with the shadow > people. >> I don't know if I'm ever going to have conversations with these >> things, > but >> I do think I'm going to name one of them. You see, often when I'm >> trying > to >> watch television one of these shadow people peaks around the corner >> from > the >> hallway to look at me. It is always the same movement, always the same > >> shadowy figure, and it always disappears when I turn to look at him > straight >> on. >> I shall name him Bernie. I don't think I will talk to Bernie as Bernie > >> has no interest in starting up a conversation with me. In fact, Bernie > >> is starting to piss me off a little bit. I tried to watch television, >> and as those of you who read this blog know I have a hard time with my > >> vision as > it >> is. I don't need no shadow person named Bernie peeking around the >> corners > to >> take my attention away from my stories to look at him when all he's >> going > to >> do is disappear anyway. >> Should Bernie do this during some other activity, like when I'm trying > >> to read a book, or during an infomercial, sure why not? Otherwise I'm >> just going to ignore him. >> Of course should Bernie decide to walk up to me and start a >> conversation, you folks will be the first to know. after, of course, >> I've called a > priest >> and had my home exorcised. >> >> Rayilyn Brown >> Director AZNPF >> Arizona Chapter National Parkinson Foundation [log in to unmask] >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: > mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn