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Ray, Thank you for posting the article on 'Shadow People'. I read it out to my husband, who could relate to it so easily. I really appreciate the trouble you take to give us a diversity of articles because there is bound to be something to interest someone or the other on this list. 'The Neglected Side of PD' was really good - perhaps you will get around to reading it sometime. Moneesha 2008/8/27 rayilynlee <[log in to unmask]> > Bill and fellow PWP: > > I did not write the article on "Shadow People" nor have I ever had a > hallucination, as I don't take PD meds. Someone named "Carl" did, but it > is not easy to see. > > I do understand the importance of citing sources so I always try to do so > when I prepare an article for posting on PIEN. It involves copying an > article from the web while including all important data like the source and > leaving out pictures, graphics, etc. 90 % of the time it works well, > especially if the article comes from a newspaper or magazine,but sometimes > an article slips through (bloggers are especially bad) as due to PD I am not > as good a wordprocessor as I used to be. > > Since the List is a diverse group I do try for a variety of articles: PD > and general research, politics affecting research, PD action alerts, > personal stories and experience. I hadn't even read all of "The Neglected > Side of PD" which many people seemed to think I wrote. I understand that > hallucinations are a problem for many PWP and that is why I chose that > article to post, but have not experienced them myself. I don't join > conversations about PD drugs as I don't take them. > > Keep in mind that 95% of the time I am "reporting" and the opinions > expressed may not necesarily reflect my own. > > In the future I will try to do a better job of citing sources. I "plain > text" and copy the articles so you don't have to go to a URL to open them. > The List will not accept articles over 500 lines or with lots of stuff. By > writing a Subject line I try to give you an idea as to what it's about. If > the source is omitted you can probably find it by searching using the title > or subject line. > > About 3 years ago Diane Wyshak of Massachusetts approached me with the > request to post articles she finds daily and that is what I try to do. We > have been partners ever since. > > Ray > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > ----- Original Message ----- From: "William P. Taggart" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Tuesday, August 26, 2008 7:25 AM > Subject: Re: Shadow People > > > Rayilyn ~ >> >> Thank you for sharing this with us. I am taking Seroquel for similar >> reasons, although you sound much further along than am I. It's good to >> know I'm not unique in this matter. >> >> I appreciate all the effort you invest in making this list interesting >> and useful. THANK YOU also for that. >> >> ABT. >> >> Bill Taggart >> >> ~~~~~~~~~~~~~~~~~~~~~ >> >> -----Original Message----- >> From: Parkinson's Information Exchange Network >> [mailto:[log in to unmask]] On Behalf Of Schaaf Angus / >> Meadow Creek Ranch >> Sent: Monday, August 25, 2008 6:01 PM >> To: [log in to unmask] >> Subject: Re: Shadow People >> >> Gee Ray, >> Sounds like loads of fun. Just dont invite me to that party. >> I'll just keep having fun in my slow motion ways. >> Take care and tell Bernie to leave you alone and dont invite others >> over. >> Rob >> >> ----- Original Message ----- >> From: "rayilynlee" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Friday, August 22, 2008 1:04 PM >> Subject: Shadow People >> >> >> I See Shadow People >>> Filed under: Parkinson's disease, Sinemet, hallucinations, humor, >>> medications, paranormal, shadow people, vision - Carl @ 9:01 pm >>> Tags: antiparkinson, hallucinations, medications, paranormal, >>> Parkinson's disease, shadow people, vision problems >>> #26 - Haunted, originally uploaded by John Martz. >>> One of the most peculiar things about living with Parkinson's disease >>> has >>> >> to >> >>> be the hallucinations. >>> Not everybody has them. However what I can tell from the experiences >>> of others with PD, hallucinations are the rule and not the exception. >>> In Parkinson's disease, hallucinations are almost always of the visual >>> >> type. >> >>> Though usually a side effect of taking antiparkinson medications, it's >>> >> often >> >>> a secondary symptom of the disease itself. >>> In my case it seems that I am never alone. I tend to see very odd >>> shadowy figures darting around me, often looking as if they are trying >>> >> >> to take >>> >> peeks >> >>> at me and then quickly hide themselves away lest I see them >>> >> face-to-face. >> In >> >>> other words, it's like dealing with my family when I make a visit to >>> >> Texas. >> >>> According to a publication by the National Parkinson's Foundation, >>> hallucinations experienced by those with Parkinson's disease "may be >>> seen darting out of the corner of the eye, or crawling bugs will be >>> seen in pattered wall coverings or floor tiles, seeing small people, >>> children and animals." >>> Welcome to my world. I generally see the phenomenon known as shadow >>> >> people. >> >>> For you ghost hunters out there, you know what I am talking about. Now >>> >> >> I believe these are just hallucinations, but a good friend of my who >>> investigates the paranormal has offered an alternative explanation and >>> >> >> way of dealing with these things. >>> You see, there's very little I can do about the shadow people. They >>> peak around corners and furniture. They climb up the walls. They >>> sometimes rush up from behind me. I see them in the corner of my eye, >>> but when I turn to them they disappear. Once in a while they will dare >>> >> >> to prance out right in front of me, but this is very rare. >>> I generally ignore these shadow people. In my mind they are >>> hallucinations caused by either my antiparkinson drugs, my disease, or >>> >> both. >> >>> My friend who is interested in the paranormal suggests that my >>> medication and/or the disease make me open to see what I otherwise >>> would not be able >>> >> to >> >>> see. He also suggests trying to have conversations with the shadow >>> >> people. >> >>> I don't know if I'm ever going to have conversations with these >>> things, >>> >> but >> >>> I do think I'm going to name one of them. You see, often when I'm >>> trying >>> >> to >> >>> watch television one of these shadow people peaks around the corner >>> from >>> >> the >> >>> hallway to look at me. It is always the same movement, always the same >>> >> >> shadowy figure, and it always disappears when I turn to look at him >>> >> straight >> >>> on. >>> I shall name him Bernie. I don't think I will talk to Bernie as Bernie >>> >> >> has no interest in starting up a conversation with me. In fact, Bernie >>> >> >> is starting to piss me off a little bit. I tried to watch television, >>> and as those of you who read this blog know I have a hard time with my >>> >> >> vision as >>> >> it >> >>> is. I don't need no shadow person named Bernie peeking around the >>> corners >>> >> to >> >>> take my attention away from my stories to look at him when all he's >>> going >>> >> to >> >>> do is disappear anyway. >>> Should Bernie do this during some other activity, like when I'm trying >>> >> >> to read a book, or during an infomercial, sure why not? Otherwise I'm >>> just going to ignore him. >>> Of course should Bernie decide to walk up to me and start a >>> conversation, you folks will be the first to know. after, of course, >>> I've called a >>> >> priest >> >>> and had my home exorcised. >>> >>> Rayilyn Brown >>> Director AZNPF >>> Arizona Chapter National Parkinson Foundation [log in to unmask] >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> >> mailto:[log in to unmask] >> >>> In the body of the message put: signoff parkinsn >>> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn