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How interesting to learn what people know about PD and how they respond to it in different parts of the world...and how exciting that there are people on the list from all over the planet who are working to create awareness. Kathleen 2008/9/5 Haroon Basheer <[log in to unmask]> > in pakistan specially in rural areas the disease is associated with > old age and goes mostly untreated.Our challenge is to create awareness > of disease and its management. > cheers, > Haroon Basheer > Chairman > Pakistan Parkinson's Society > www.parkinsons.org.pk > > On 9/5/08, chew nee kong <[log in to unmask]> wrote: > > In my country (Malaysia), the main problem about PD is ignorance. Almost > > everyone doesn't know anything about PD. Even among those who know PD, > they > > think PD is an unimportant illness. > > > > Recently, we published a book with the title "Selfless Warrior" - > fighting > > for the rights of the neglected Parkinson's community in Malaysia". This > > book was a biography of Mr. Lloyd Tan, the founding father of the first > > Malaysia Parkinson's support group. He died last year, and this book is a > > tribute to him. > > > > Dr Chew Nee Kong, Malaysia. > > > > on the > Date: Thu, 4 Sep 2008 14:31:58 +0530> From: > > [log in to unmask]> Subject: Re: Ignorance about PD> To: > > [log in to unmask]> > Indeed it is a dilemma. My husband was > > diagnosed while he was still working> and we knew well that his employers > > would not look kindly on an employee> with a disease like Parkinson's. > So, > > while he was in service, no one except> a few close friends and family > knew > > about it. And yet, if we do not talk> about it, the enormous ignorance > about > > the illness remains.> > Moneesha> > > > 2008/9/3 Kathleen Cochran > > <[log in to unmask]>> > > It's something of a dilemma, isn't it? > People > > with Parkinsons who are> > employed, for instance, might not want to > raise > > awareness of the full range> > of PD's possible effects.> >> > Kathleen> > >> > >> 2008/9/2 rayilynlee <[log in to unmask]>> >> > > Isn't Parkinsons just > > having tremors?> > > Created by katmarie> > >> > > "I just got back from > an > > annual family campout. There is about 40 of us> > > that go. Well we were > > all sitting around and one of my aunts asked how I> > was> > > doing with > my > > Parkinsons. I made a comment about rigidity,confusion etc.> > One> > > of > my > > aunts said " I thought PD was just tremors. I could have come off> > my> > > > > > chair. I started to rattle off some my symptoms and the somehow the> > > > > conversation got lost. Don't get me wrong. My family are wonderful> > > > > supportive,loving,people. I guess I forgot how ignorant most people are> > > > > > about the disease. That just shows how much more media exposure PD > needs.> > > > I> > > want to send an email to them all, with an explantion of the > disease > > and> > > symptoms but then It would seem like I wanted sympathy. Maybe > for > > X-mas I> > > will send them all an emial card with PD information."> > >> > > > >> I didn't write this, Ray> > >> > > Rayilyn Brown> > > Director AZNPF> > > > > > Arizona Chapter National Parkinson Foundation> > > [log in to unmask]> > > > > ----------------------------------------------------------------------> > > > > > To sign-off Parkinsn send a message to: mailto:> > > > > [log in to unmask]> > > In the body of the message put: > signoff > > parkinsn> > >> >> > > > ----------------------------------------------------------------------> > > To > > sign-off Parkinsn send a message to: mailto:> > > > [log in to unmask]> > In the body of the message put: signoff > > parkinsn> >> > > > ----------------------------------------------------------------------> > To > > sign-off Parkinsn send a message to: mailto: > [log in to unmask]> > > In the body of the message put: signoff parkinsn > > _________________________________________________________________ > > Easily edit your photos like a pro with Photo Gallery. > > http://get.live.com/photogallery/overview > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn